Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

Reply
 
Thread Tools Display Modes
Old 02-08-2010, 06:32 PM #1
keep smilin keep smilin is offline
Member
 
Join Date: Aug 2009
Posts: 851
15 yr Member
keep smilin keep smilin is offline
Member
 
Join Date: Aug 2009
Posts: 851
15 yr Member
Heart Loretta....take notice.....

Quote:
Originally Posted by loretta View Post
Hi Kathy,
I had migraine some years back and attended support group glasses at the hospital. Also attended Biofeedback-which is learning different methods to relax parts of the body, know our signals. It was good. The TN is bad-I've had it lately-no fun. The TN site is good here. Good to heard from you-have a good day and hopefully low pain day.
My Dr. opened his two clinics recently. He has HBOT in both. I'm saving $ to go thru 1 or 2 series. Probably this summer. He has been having good success with others for various conditions. TV crew has been out 3 times.
I'll just tell once experience. A woman was driving the freeway in Phoenix-There was a wreck of two other cars-going into a metal fence-the pole became a missle and went thru her windshield and took off part of her little finder and arm and then impaled her shoulder into the back of the seat. They saved her arm with 18 operations. Her shoulder became frozen (like me at the beginning of my RSD following surgery) Anyway, her Neuro. asked my Dr. a Neuro if he would take his patient and do the HBOT. He did and in 9 treatments she was waiving at the tv crew wo reported her story. It took me 100 pt treatments to get my range of motion back. He has had a couple more stories where the TV crew came out. One clinic is 5 min. away and the other is 10 minutes away. I can't wait.I've started a home based business on healthy chocolate with a patent on new method of making the chocolate- cold pressed instead of cooking it and loosing nutrients. It's the #1 antioxidant in the world.
About the TN, I also have ear pain. Sometimes get the little red painful dots inside my ear. Eyes have been crusty but not painful. I'm been having breathing issues-will talk to my Dr. about. It's sudden uncontrollable grasping for air. Wakes me up at night. Never know when it is coming.
Take care, loretta with soft hugs
So nice to read your note..I must say I am concerned for those red dots.. as in your ear..I believe to understand the puppies show up as a "trail marker" for our RSD..I also have them and many on my affected areas... check em out Loretta.. plz.

Also the breathing issue I wonder if internal is that and RSD thingie?? Another question for your Dr.....

My pain level never changes but good days to me is when I feel strong and allow the love in my hear to pull me thru.. some days I can get sad, I never cry really just scared of my RSD and my future with it....

Oh btw... I gotz to get me some of that cold chocolate..kidding..I would bah in that brown stuff if I was allowed to..... good luck on your endeavors as I think that is awesome!!!! I'll be your taste tester...

Hugz Loretta!! Kathy
keep smilin is offline   Reply With QuoteReply With Quote
Old 02-09-2010, 12:48 AM #2
loretta loretta is offline
Senior Member
 
Join Date: Feb 2007
Posts: 1,090
15 yr Member
loretta loretta is offline
Senior Member
 
Join Date: Feb 2007
Posts: 1,090
15 yr Member
Default

Quote:
Originally Posted by keep smilin View Post

So nice to read your note..I must say I am concerned for those red dots.. as in your ear..I believe to understand the puppies show up as a "trail marker" for our RSD..I also have them and many on my affected areas... check em out Loretta.. plz.

Also the breathing issue I wonder if internal is that and RSD thingie?? Another question for your Dr.....

My pain level never changes but good days to me is when I feel strong and allow the love in my hear to pull me thru.. some days I can get sad, I never cry really just scared of my RSD and my future with it....

Oh btw... I gotz to get me some of that cold chocolate..kidding..I would bah in that brown stuff if I was allowed to..... good luck on your endeavors as I think that is awesome!!!! I'll be your taste tester...

Hugz Loretta!! Kathy
Hi kathy, thanks for your thoughts on my ear, red dots. There was a post on red dots, lots of friends here have them. I have one new lesion, about size of a quarter. Last year, i had two and they got infected-fun- really painful. I said then if I got them again I would go to the hospital. My husband cleaned them out. I still have scares from them.
I'm going to try and find my letter to you. or re-write your letter. Will send you some samples.
My husband and I were talking this evening and he said he doesn't do pain. I'm glad it's me instead of him. He wouldn't be a good patient I'm afraid. He does all the grocery shopping and cooking. We both share in the house work.
Take care, your friend, loretta with extra soft hugs
Kathy, what do you mean trail makers? How do I check them out? Is there anything you can do? I've shown them to my Dr. I have a new internist and gyn Drs. I'll show them to these two Drs. They have treated RSD before.
loretta is offline   Reply With QuoteReply With Quote
Reply


Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off


Similar Threads
Thread Thread Starter Forum Replies Last Post
Sounds crazy but RSD'ers.. any jaw/teethpain?? keep smilin Reflex Sympathetic Dystrophy (RSD and CRPS) 12 10-21-2015 03:38 PM
RSD'ers... anyone else have a mountain??? keep smilin Reflex Sympathetic Dystrophy (RSD and CRPS) 29 02-03-2010 02:43 PM
Am I a monster? trying not to sleep Posttraumatic Stress Disorder 17 01-27-2010 05:30 PM
Good grief, Has this EVER happened to any of you RSD'ers? InHisHands Reflex Sympathetic Dystrophy (RSD and CRPS) 13 03-27-2007 01:55 PM
Ok questions ot all us RSD'ers RSD_Angel Reflex Sympathetic Dystrophy (RSD and CRPS) 2 12-18-2006 08:55 PM


All times are GMT -5. The time now is 07:06 AM.


Powered by vBulletin • Copyright ©2000 - 2025, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise (Lite) - vBulletin Mods & Addons Copyright © 2025 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.


Always consult your doctor before trying anything you read here.