funny Daniella.... but my RSD is the worst in my rt. leg but I have it in both along with my lft. hip, lft. shoulder and rt. jaw... Now these painful headaches/ear pain..it is very painful and when I first started having the head pain..I ws sent for an MRI..nothing to account for the pain and as far as my ear pain the neuro at the time said it was because I had shingles on my neck and it was dormant there causing hearing loss and ear pain..but funny as RSD is a neurologic disorder and it took me months to find a Dr. to give me some reason for my ear troubles.. a few years later it was evident that my RSD was present...it was atribated by my rt. knee surgery but the original area of concern I do not know as my leg was swollen and painful before the knee operation... but we did the surgery anyway...I could be crazy but then maybe I am not... lets just say I am ...tee-hee....

Nice hearing from you all!!!

Gentle hugz, k

I started getting monster headaches about 14 months after the onset of RSD. In fact, I can remember the exact day - October 18, 1987

I spent as much time with doctors looking for the cause of migraines as looking for the cause of the RSD.

A do notice a corrolation between a flare-up of the RSD and a more severe headache. Sometimes one is the warning of the other. Too bad I still can't do anything about either. (Not too effectively, anyway.)

Mike

When I suffer from my "monster headaches" I'm unable to move from my bed for hours at a time. They are usually brought on by too much physical activity - like when I use my arms for anything - or if a bad storm is coming. I also got a horrific headache from my PT massaging the occipital area of my head last year. The last really bad headache I had was when I tried to clean up what most people would consider a minor amount of leaves in my driveway with a rake - I think the vibrations of the scraping of the rake is what caused the head pain.

I haven't found anything that works yet on my really bad head pain. Usually I wake up vomiting from pain, then spend the rest of the day huddled in bed trying not to move and hoping for unconciousness. I usually take meds to help knock me out, and will apply heat to my neck and head in an effort to stop the spasms. It takes time for my headaches to pass - a day or two or three. And another week or so before things start to calm down for me in other areas of my body, too.

Monster headaches are the bane of my existence - I have ceased doing anything at all strenuous with my arms because of them. My head pain is the primary reason why I am seeking ketamine treatments - I can't do a whole lot because of them right now.

XOXOX Sandy

Sandy, I'm so sorry you get that sick. I've been there, but not like you describe. or as often anyway. When my Mom was dying of cancer, I cared for her the last few months. There was no hospice then, in 1973. Dr. gave her morphine and valium. The valium at 2 mg. helped to calm her system down. Have you asked your Dr. about a mix like that. I take vicodin and lorazepam, which is an anti-anxiety and my vomitting from high pain has stopped. BioFeedback is also something that has helped me with migraine headaches. Aren't they the worst, headaches. Like I mentioned before, I get trigeminal nerve pain right at the temple. Have you read about it on this forum. I've been having it more lately, I will ask my Dr.
Well swettie, keep in touch and let us know how you are doing. Your friend, loretta with extra soft hugs