Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

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Old 02-09-2010, 07:02 PM #1
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Heart Hello Jeanie...

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Originally Posted by Wilbyfree View Post
Just was reading your post and conversation with Loretta. I am sorry about your headaches and all the pain you deal without and medicinal support. I do know what you are saying, I also have celiac disease, and must be very careful about the medication that I take (most do have gluten in them). However, have you ever tried something mild like valium or lorazepam? My doctor had me on a small dose of valium twice a day years ago and it really did help the overall pain. Headaches were not as intense, and also it helped with the Causalgia and stress. I now take Lorazepam twice a day as needed, it truly helps my pain much better than any of the other pain medications that I have tried and it actually calms down my stomach. It is kind of like one of those cover all medications. But in my opinion, the valium was better cause it had a greater effect on the muscle spasms as well. There is also another home remedy for severe headaches that your husband would love....my naturopathic doctor told me about and it really works. If you can't figure it out, pm me and I will clue you in. Hope your symptoms ease up.

Jeanie
So nice to hear from you and I really appreciate your thoughts about the meds.. so thoughtful of you.... thank you.... unfortantely i have tried not only the valium but also the Lorazepam..I ended up praying..you know over the percelian god... I learned long ago..see I had to have bilaterial first ribs remvoed after a car accident.. 22 yrs. ago..I had TOS (who knows if that is related to my RSD showing up or not)....but after my first rib.. and trying the meds for pain then..I did the second rib on Tylenol only.. it was so not worth getting sick with cuts in my chest.. But it doesn't stop me from trying new stuff as the RSD pain,. as you know is relentless... Have not had a break from it in almost 3 yrs... Iam either crazy or stubborn...I think a bit of both... Honestly..I get thru by the love in my heart and know that life is still precious even if I have to grimice once in a while ...walk funny and fake it...

So darn nice to chat with you, Jeanie..thank you for thinking of me...

Have a restful evening....

Hugz, Kathy

Lets see (finger to my chin)..something my husband would like and pain relief for me... let me guess it has nothing to do with his grocery shopping abilities right??....
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Old 02-09-2010, 08:47 PM #2
Wilbyfree Wilbyfree is offline
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Default Hi KS,

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Originally Posted by keep smilin View Post
So nice to hear from you and I really appreciate your thoughts about the meds.. so thoughtful of you.... thank you.... unfortantely i have tried not only the valium but also the Lorazepam..I ended up praying..you know over the percelian god... I learned long ago..see I had to have bilaterial first ribs remvoed after a car accident.. 22 yrs. ago..I had TOS (who knows if that is related to my RSD showing up or not)....but after my first rib.. and trying the meds for pain then..I did the second rib on Tylenol only.. it was so not worth getting sick with cuts in my chest.. But it doesn't stop me from trying new stuff as the RSD pain,. as you know is relentless... Have not had a break from it in almost 3 yrs... Iam either crazy or stubborn...I think a bit of both... Honestly..I get thru by the love in my heart and know that life is still precious even if I have to grimice once in a while ...walk funny and fake it...

So darn nice to chat with you, Jeanie..thank you for thinking of me...

Have a restful evening....

Hugz, Kathy

Lets see (finger to my chin)..something my husband would like and pain relief for me... let me guess it has nothing to do with his grocery shopping abilities right??....
Oh no, and I have fired my husband on the grocery shopping as well, I mean it is like...what were you thinking!!! I mean have you ever served sardines and chips with chicken? LOL, what would we do without them. I am so sorry that you are so sensitive to medications and they have that affect on you. I do not know how you do it. I mean, I take a very small amount of medications due to stomach problems, but after eight years of severe pain I finally broke down mentally, and just had to start taking something, however, I must admit, I do have my days with the porcelain God. I also meditate, TENS Unit, heat therapy, relaxation techniques, water therapy and prayer. I commend you for your strength. I do hope your monster headache eases up, those alone can put me over the porcelain God. God Bless.

Jeanie
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Old 02-09-2010, 10:07 PM #3
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Grin Thank you Jeanie..

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Oh no, and I have fired my husband on the grocery shopping as well, I mean it is like...what were you thinking!!! I mean have you ever served sardines and chips with chicken? LOL, what would we do without them. I am so sorry that you are so sensitive to medications and they have that affect on you. I do not know how you do it. I mean, I take a very small amount of medications due to stomach problems, but after eight years of severe pain I finally broke down mentally, and just had to start taking something, however, I must admit, I do have my days with the porcelain God. I also meditate, TENS Unit, heat therapy, relaxation techniques, water therapy and prayer. I commend you for your strength. I do hope your monster headache eases up, those alone can put me over the porcelain God. God Bless.

Jeanie
Great note and I once again appreciate it so much... I do worry about my future without medicine and with RSD..I know and you do too how devestating RSD is and such horrific pain over long life long time...I guess I go to bed each night praying that I will wake up without RSD but as each day presents itself... I still have RSD..somehow I have a re-newed will to fight and move forward.. what helps my heart feel happy and willing to go on..it's the love and support I feel you, my friends as well as my family and friends here give me... I guess what I really want to say is I could not do this without you... esp. having to be medicine free... bless you too my friend..

Hugz, Kathy


(ever see the print on the side of the our procelain fixture..I believe it says.. don't forget to clean me.. tee-hee)!
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Old 02-10-2010, 10:29 AM #4
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Dear Jeannie and Kathy,

Thanks for the info on the Lorazepam for quieting down pain. I don't take anything like that now, just a muscle relaxer before bedtime. I appreciate it....

With a winter storm hitting us today (the last one missed us), I can feel the "bugs crawling" on the back of my head and my shoulder feels like someone is stabbing knives into it, even with meds I don't seem to be able to escape the pain. KS, I am sorry that you have such a sensitive stomach. When my pain levels are high I end up sick anyway - that is why I don't use my arms anymore. Its not worth it.

Have a good day, I enjoy your posts. XOXOX Sandy
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Old 02-10-2010, 12:50 PM #5
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I was also suggested trying lorazepam from my pain doc so I agree about looking into that. Were getting a weather change here too and I feel it.
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Old 02-10-2010, 01:57 PM #6
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Quote:
Originally Posted by SandyRI View Post
Dear Jeannie and Kathy,

Thanks for the info on the Lorazepam for quieting down pain. I don't take anything like that now, just a muscle relaxer before bedtime. I appreciate it....

With a winter storm hitting us today (the last one missed us), I can feel the "bugs crawling" on the back of my head and my shoulder feels like someone is stabbing knives into it, even with meds I don't seem to be able to escape the pain. KS, I am sorry that you have such a sensitive stomach. When my pain levels are high I end up sick anyway - that is why I don't use my arms anymore. Its not worth it.

Have a good day, I enjoy your posts. XOXOX Sandy
Sometimes..I must be the worlds most driven or insane person... as far as the meds..thank you, Sandy..I appreciate that.. at times, most times.. my pain causes me to sweat it hurts so bad but still it is so not worth being sick also..I have learned my lesson many, many times so I just try to live in the moment...the biggest problem is my progression due to the pain level being so great that it wears me out... but I try hard to continue to push thru my pain and move... like I said..I am a bit lug-headish!! I must of ate dry dog food as a kid!!!!

Enjoy your day...I pray less pain for everyone!!

Hugz, Kathy
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