Hi KS!

I feel exactly like you and many of us feel! I live in Maryland and we just got another blizzard yesterday. It's snowed more this winter than in the past ten years combined! Set new record for all-time highest amount of snow...ever! AND, lucky us, another storm coming next Monday!!! AHHHHHHHHH!! (And I LOVE snow!).

I missed my pain doctor's appt., cuz they got hammered too (Philadelphia) and I will run out of pain meds, therefore I will have to resort to my vicoden, which I am allergic to and make me vomit. Gotta pick the lesser of two evils; agonizing pain or puking! (sorry to be so graphic.)

As far as pain goes, for me anyway...Deep burning in my RSD leg, agonizing muscle spasms, shooting pain, bouts of sweating/shivering, one inch of atrophy, extreme burning (like a jellyfish stung me), piercing jabbing jolts of fire. 24 hour a day, 7 days a week. My husband says that I even cry in my sleep.

I am very sorry that you are going through this. BUT, everyone here is very kind and caring and sympathetic (get the joke?). I have made many wonderful friends here and so will you. One friend has not heard from me in a while (bad flare from snow) and PM'd me just to check on me! Now that's friendship!

Oh, and HAPPY BIRTHDAY! and congrats on being a Grandma!

So nice to hear back from you both..Yes,.. My RSD has never ever stopped or lessened in the 3 years I have had it..Of course, I gotx the SCS unit and now it has spread... Yes, my Blood pressure just today was 134/84.. it does travel as low as 50 on the bottom also.... I too have whole body sweats then turn cold instantly...and I have had 4 out of 5 nerve blocks.. medications..two arms length which I had to stop taking and now I am on nothing cold turkey as I is just too hard to be sick too.. I had accupuncture.. I was told I am too far advanced for the oxygen chamber...(HBOT)and now off to Drexel with a "rush" stamped on my forehead...in March the 15th.. This is only a consult to see Dr. S and what is possible for me...honestly..I am having lots of trouble wrapping my heart around this step..maybe I am getting tired of the whole RSD game..or possibly the travel and $$$ it is going to take, I don't know... Anyway... I say the I am okay..and Iam okay.....I hurt, as everyone does...I just get up and try again each day... Oh and I never cry...some reason..I just can't do it...

Kim, how long have you had your constant symptoms?? Sandy, I am so happy you go in and out of flares....

Much love to you, my special friends!!! And thank you for allowing me to spew!!!

Kathy

Hi Cindi,

It sounds like you have some great news too! A new Grandbaby, how wonderful. Your birthday is a wonderful celebration as well. Focus on the beautiful things while this is happening. I am sorry you are hurting and I will also lift you up in prayer.

Stay warm and take some epsom salt baths .Have you tried some yoga stretches. There is a dvd out there called am/pm yoga, It is just small stretches nothing tremendous that will hurt you. I love the one with the Asian man. It is very gentle stretches. The other one is a more advanced stretching it has a lady I can't remember if it is the am/pm one. You can buy it at Target or Barnes and Nobles bookstore.


My prayers are with you,

Sandy

Dear Cindi1965,
It sounds like you are having a meltdown for sure which we all have all the time so you are not alone. When I get like this I go into my bedroom and close the door and turn out the lights and cry. I call it my time out. Sometimes I may not cry but just being in the dark and having it quiet is calming for me. I stay there for as long as I need to and then come out and I feel like a new person. Sometimes I will lie there and pray and it does relieve some stress. I will keep you in my prayers tonight.
Take care,
kathy d

I can so relate to all the symptom descriptions and mental strain. Keep smilin I can really relate about the traveling and $$$ for docs. I am so drained and may be doing it again. At this point I don't even know how to feel or think.
Kim could you call your doc who rx your meds that you will run out of and ask if he can call you in even a few till you get it in?
Cindi congrats on being a grandma. I wish I had more answers and relief for you. I know how life factors increase our pain. So many natural things that cause of us pain. I hope you get through in the best possible way and better times come ahead asap.
Sending warm and pain free thoughts to all

Yes, I do take Xanax for anxiety meds and they do help...I thank you all for the support. I have been pushing through and doing my PT and then I found the last.fm station, listening to it with the lights off. I refuse to let RSD take me down. One good thing is that my kids have been at their dad's and my hubby does a good job taking care of me.....so far on my Wii Fit Plus I have lost 7.5 lbs by just doing the balance and concentration games...my favorite is the ski jump. I am feeling better to day so I am getting on the board and do some concentration games, later

Also, I got great news about my SSDI....I got in touch with Senator Jay Rockefeller's office through my local state Delegate and it looks really good that I am going to get my case through.....people don't think of getting in touch with politicians to help them with WC or SSDI...don't give up

Hi Cindy,

Sorry to hear that you have been in a flare! I hope you are feeling better now and that the pain has lowered. I do understand what you are going through, I fell last Saturday and tore all the ligaments in my knee (had to go to hospital yesterday because of it) so it has been extremely painful lately!

Thinking about you and keeping you in my prayers,

Alison

Miss Allison, where have you been? Your positive little spirit is what drew me to this board...I am soooo sorry about your ligament, I hope that you feel better soon.