Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

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Old 02-15-2010, 04:54 PM #1
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Well i agree with ya.. my doctor just kind of gave up on me all of a sudden.. Kind of freaked me out.. Made me feel like i had the plague or something.. But I know together we can help each other, and the questions i have had for over a year have finally been answered and i feel a huge weight has been lifted off my shoulders. So eventually I would like to meet all of you wonderful people who have helped me through this..

Thanks..
Always your friend

Barbara
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Old 02-15-2010, 05:30 PM #2
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Grin Barbara...

Quote:
Originally Posted by babs74 View Post
Well i agree with ya.. my doctor just kind of gave up on me all of a sudden.. Kind of freaked me out.. Made me feel like i had the plague or something.. But I know together we can help each other, and the questions i have had for over a year have finally been answered and i feel a huge weight has been lifted off my shoulders. So eventually I would like to meet all of you wonderful people who have helped me through this..

Thanks..
Always your friend

Barbara

I am sorry your Dr. ran on you..I think he ran cuz he was out of his area of expertise..RSD is not common for many Dr. Seems they either know about it, a bunch or they don't anything! That does not make it any easier for us tho.. I am so tickled we can help you... Were family..family don't turn their backs on eachother...ya..one day we'll throw a huge RSD party... and get to meet eachother...I'll be the one who keep(s) smilin!!!

Hugz, k
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Old 02-15-2010, 06:16 PM #3
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Dear Barbara,

I requested an updated ketamine doctor list from the RSDSA today. In DesMoines, Iowa they have Dr. Steven Quam 515-221-9222 on the list.

Docs that offer ketamine for RSD will be pretty experienced in the field and should be able to help you better than most other docs. How far are you from Des Moines?

If you want me to e-mail you the entire list that I got today just let me know.


Good luck. XOXO Sandy



Quote:
Originally Posted by babs74 View Post
Well i agree with ya.. my doctor just kind of gave up on me all of a sudden.. Kind of freaked me out.. Made me feel like i had the plague or something.. But I know together we can help each other, and the questions i have had for over a year have finally been answered and i feel a huge weight has been lifted off my shoulders. So eventually I would like to meet all of you wonderful people who have helped me through this..

Thanks..
Always your friend

Barbara

Last edited by SandyRI; 02-15-2010 at 06:23 PM. Reason: editorial
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babs74 (02-16-2010), Kakimbo (02-16-2010)
Old 02-16-2010, 12:15 AM #4
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Default yes!!!

My drs appts now are in Des Moines and so are my lawyer.. And i would love that list if you wouldnt mind..

my email is mickeymouse52501@yahoo.com
I live about 90 miles away.. Thats pretty awesome that you found that.. I will call and talk to someone soon about that..My lawyer likes to make my appointments, cuz my last one the resident i saw was opposed to my case and stressed that. and hes worried that it might hurt my case and were almost done with it.. So i will talk to him about this doc asap.. He might know of him.. thanks so much..the last resident tried to get me to fire my attorney.. it was quite funny now. but at the time i was quite upset about it.. my attorney has become my best friend in helping me to be honest.. hes helped me with bills and everything..hes been a great help..
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Old 02-16-2010, 03:45 AM #5
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Hi Babs,

Welcome to our club, but sorry that you had to join !

Not a great pain day for me (hence why I am still up at 3:30 ), but I wanted to say......Hang in there !

When you do find a doc who 'gets it' and gives you some meds to lessen the pain, you will be able to feel like there will be some decent days ahead for you.
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