Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

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Old 03-26-2010, 04:13 PM #1
SandyS SandyS is offline
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Join Date: Jan 2009
Location: Tampa, Fl.
Posts: 409
15 yr Member
SandyS SandyS is offline
Member
 
Join Date: Jan 2009
Location: Tampa, Fl.
Posts: 409
15 yr Member
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Hi Debbi,

I have a daughter with RSD and she went through the The Cleveland Clinic Pain Rehab hospital two times. She has had Ketamine Infusions 3 day four hour infusions twice, she has had sympathetic Nerve Blocks, PT OT, and other various things. Yes the programs are a great way to teach the kids how to manage their lives...BUT it doesn't take their pain away. It doesn't stop the RSD from spreading. The programs teach them coping skills. I highly recommend them for coping and managing pain. But, like I said, it doesn't take their pain away.


Sandy
Quote:
Originally Posted by debbiehub View Post
Moms - I just have to ask you what treatments you have gone thru with your children. I run an RSD support group and a women took her son to the mayo clinics childrens hospital in boston and had AMAZING results. I can put you in touch with her!!!!!!!!!!!

Debbie

You can email me at spudsailor@aol.com
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