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Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS) |
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#1 | ||
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Senior Member
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I just glanced over your letter a couple more times. Have you actually been diagnosed with RSD or CRPS They are really the same thing. I'll explain the difference another time. Take care, loretta ![]() |
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#2 | |||
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Junior Member
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Hi!.
I read ur story. I am sorry to hear about your story and it sounds a little like mine.. Mine was a work comp thing and they really kept throwing me around to different doctors and not telling me anything.. Wouldnt give me anything for pain and saying i was faking or whatever.. but i decided to call a lawyer and he gave me great advice and told me to find a doctor and not tell them i was involved in a case until i was in a room then they couldnt refuse treatment.. So i would suggest you go to a major ortho doc in another city who you have never seen before.. Explain about your pain and every thing, then when you get in there to see them tell them bout ur surgery and u can even take ur records with you so u have them if u like.. Then if they are a good doctor they will run some tests to find out what is exactly wrong. I hope this helps you.. Hopefully your new friend Barbara ![]()
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Barbara |
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#3 | ||
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New Member
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Thank you kindly to everyone for their warm responses.
I actually have not been diagnosed with RSD and only began searching on symptoms via the internet when an internist from a running forum i participate in suggested RSD (when only my foot was turning colors and having temp changes). I think my initial post was a bit convoluted. I was having a very bad day, full of frustration, disappointment and after re-reading my feelings definately made the post hard to decipher. this one may be too (i'm still having a hard time explaining all i'm going thru) ![]() My confusion lies in severeal areas: 1. is my pain that is actually in my hip from part of the healing process, the screws causing irritation, or something else. The pain is electrical shock, burning in the hip (yes I DO HAVE A SWOLLEN LYMPH NODE IN MY GROIN, larger then 1.5 cm. )Some of my fellow runners have suggested a labral tear. (unfortuantely, this is where i was getting the run around from my ORTHO. he was simply saying after surgery he had no idea why i was having so much pain because it was a simple surgery) I think the pain is a combo of healing from surgery and something else going on. 2. Had it stayed in the hip area i would have dealt with that by getting a second opinion with another ortho. 3. Now my right foot is numb and burns or feels more like icy hot (the feeling u get one it's so cold, it travels up my leg to just below my knee. Then my hands started changing colors and having the same "icy hot" feeling. Then my left foot is showing the same symptoms. All my extremities look like there is no oxygen being supplied thru the blood to them. What is causing this? My hands aren't tied to any nerves that could have been damaged during surgery. At least nothing i've read indicates that. 4. So with these "unrelated to injury" symptoms (or at least i assume/assumed they were) I go to see two family medicine practitioners. Both of which just don't seem to want to go any where near the issues i'm dealing with. I am SO SO surprised by the "i dont' know's" I mean if i walked in to the office and didn't mention my surgery, i think they would be all over finding out why i'm having these issues. 5. I don't want to say the OS did something wrong or did not properly diagnose me. What i do know is that i still have very similiar pain in my hip, new pain in my hip, severe temp changes in my feet and hands w/icy hot pain and my left foot has a pins and needles feeling. My feet and hands look very similiar to pics on here. I wouldn't say the pain i have now is severe. The pain i had for the first 10 days was severe. The pain i have now is extremely uncomfortable and gets more irritating as the day progresses. Night time is the worst (in bed). My next step is to get a second opinion from an Ortho in another city. I've always been a very holistic medicine type person, firmly believing alternative medicine and that your body heals itself if given the opportunity. I can't say that this experience w/DRS. has made me any more faithful in western medicine. I appreciate the opportunity to vent. I think just being heard and knowing that someone can symphathize with you when you can't get any answers makes all the difference in your mental health. I believe 100% that your mental being can harm or improve your physical being and even thought i believe that I find myself falling in that "woe is me" mentality. Thanks for allowing me to come on here and just vent away regardless of what condition i may have. I wish you all a day of normality and free of pain or discomfort (as much as you can). hipgirl |
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"Thanks for this!" says: | Jomar (02-11-2010) |
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