Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

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Old 02-14-2010, 06:52 PM #1
RsdnScared RsdnScared is offline
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Confused 7 months since diagnosed with RSD and getting worse I Need help !

I was involved in a terrible car accident in july 09 and had emergency surgeries on my left leg leaving me with RSD/CRPS. I've been on Oxycotin and Roxiecoedone and the pain is so aggressive and unrelenting. I noticed when active with physical therapy and picking my mind off my condition the days were manageable. 7 months later the pain is very intense and im looking if anyone can reccomnend doctors in or around New York or really the best doctors because im finding doctors that know less than me about this condition ! thanks to anyone with any input

I was put on MsCotin (morphine) 30 mg's 3 times daily to see if it was the oxy that didnt work and that stuff was even worse on my system physically and i really felt it did no justice to my pain.
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Old 02-14-2010, 08:00 PM #2
SandyRI SandyRI is offline
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In NYC Try the Hospital for Special Surgery. Dr. Richman/Dr. Seth Waldman 212-606-1015
and St. Lukes/Roosevelt Hospital Dr. Ronny Hertz 212-523-6367

On Facebook there is a site called Ketamine Klub. If you go to the discussions board there is a link for a doctors list. That is where you can find this information. I put in the info for NYC. But if you want info about any other area it is there for you.

Good luck to you.

XOXOX Sandy



Quote:
Originally Posted by RsdnScared View Post
I was involved in a terrible car accident in july 09 and had emergency surgeries on my left leg leaving me with RSD/CRPS. I've been on Oxycotin and Roxiecoedone and the pain is so aggressive and unrelenting. I noticed when active with physical therapy and picking my mind off my condition the days were manageable. 7 months later the pain is very intense and im looking if anyone can reccomnend doctors in or around New York or really the best doctors because im finding doctors that know less than me about this condition ! thanks to anyone with any input

I was put on MsCotin (morphine) 30 mg's 3 times daily to see if it was the oxy that didnt work and that stuff was even worse on my system physically and i really felt it did no justice to my pain.
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Old 02-14-2010, 08:23 PM #3
keep smilin keep smilin is offline
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keep smilin keep smilin is offline
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Quote:
Originally Posted by RsdnScared View Post
I was involved in a terrible car accident in july 09 and had emergency surgeries on my left leg leaving me with RSD/CRPS. I've been on Oxycotin and Roxiecoedone and the pain is so aggressive and unrelenting. I noticed when active with physical therapy and picking my mind off my condition the days were manageable. 7 months later the pain is very intense and im looking if anyone can reccomnend doctors in or around New York or really the best doctors because im finding doctors that know less than me about this condition ! thanks to anyone with any input

I was put on MsCotin (morphine) 30 mg's 3 times daily to see if it was the oxy that didnt work and that stuff was even worse on my system physically and i really felt it did no justice to my pain.
I am so sorry for your pain..We all understand the intensitivy and life altering hurt this is.... I have to ask..where in New York??? New York City or more Northern New York...as is a big State... Thank you for your information on the morphine..I am so doomed.... please know we are all friends here and will do our best to give you support and help....Hang in there as RSD is just mean...again..I am sorry!!

Kathy
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Old 02-15-2010, 08:18 AM #4
gabbycakes gabbycakes is offline
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Smirk Be carefull of the morphine line of meds.

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Originally Posted by keep smilin View Post
As many of you know..ouch..my system is very ultra snesitive and I can't not try meds as my Dr. recommends..so he has recommended morphine now.. Anyone one taken that with success of lower or managing their pain?? Any advice about what to expect?? My RSD is noted as a very aggressive form..and my system can not withstand pain meds. but I need to keep looking for help...

Hugz,,Kathy
Just a note if you are taking morphine or any other narcotic medication and you develop a dry mouth notify your dentist. Dry mouth comes from morphine more than the other type of pain medications and a dry mouth can really do harm to your teeth. You need the saliva in your mouth or decay will increase even if you brush many times a day. There is a medication which brings saliva to the mouth and helps with the dry mouth. I forget the name I believe it started with an "R" . I will try and find the exact name and post later.

Good Luck

Gabbycakes
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"Thanks for this!" says:
Kakimbo (02-16-2010), SandyRI (02-15-2010)
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