Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

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Old 07-11-2011, 07:15 AM #1
birchlake birchlake is offline
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Join Date: Jan 2010
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15 yr Member
birchlake birchlake is offline
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Join Date: Jan 2010
Posts: 363
15 yr Member
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Quote:
Originally Posted by nige1960 View Post
[Hi Birchlake,

Hope you don't mind me asking?, what were the very first symptoms/signs of your crps before it got worst,
I Have slight swelling in the left ankle the feeling of running water down my leg and twiching calf muscle.
Now the right leg ankle has swelling. very worrying
doing plenty of walking keeping things moving.
Every person seems to have their own unique symptoms and progression.
Mine included burning pain, hot and cold changes, and severe inflammation. Curiously, (and thankfully) I never have had the "hypersensitivity" that many suffer with.

Remember that you do not have to have ALL of the classic symptoms of CRPS to have CRPS.

Walking is probably one of the most important things for me. It seems a bit counter-intuitive, but you MUST keep moving!!

My mantra is "use, but not over-use". That means that you have to find the threshold of how long of a walk or how much time on your feet you can handle before it's time to sit down. This will not get better overnight, but it CAN get better. It CAN be managed (for some, not all).

Good luck and stay on it. You must develop a daily management plan. Be reasonable and don't be afraid to challenge yourself in small steps!
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