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Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

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CRPS in only half my big toe!

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Old 10-25-2011, 07:33 PM #1
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My wife tells me if I didn't have my sense of humor I wouldn't have any sense at all...
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Hope for better days.....
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birchlake (10-26-2011)
Old 10-26-2011, 03:29 AM #2
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My wife tells me if I didn't have my sense of humor I wouldn't have any sense at all...
Keeping a sense of humour is really important and I have to admit I've been struggling with that. I really kind of sunk in these past days how long-term this CRPS can be. I guess before I thought it would be something that would be easily fixed like a sprained ankle or something.

Still, got a few specialists to see so hopefully they'll come up with some bright ideas to sort it out a bit more.
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Old 10-26-2011, 03:31 AM #3
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My wife tells me if I didn't have my sense of humor I wouldn't have any sense at all...
Off for a (short) run this morning to record how quickly the toes flare up. I've been recording regularly various exercises (cycling, cross-trainer, walking etc) to see if the drugs are prolonging flare up times. I seem to be getting about 10 mins extra on this Amitriptylene 25mg.
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Old 10-26-2011, 06:09 AM #4
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Off for a (short) run this morning to record how quickly the toes flare up. I've been recording regularly various exercises (cycling, cross-trainer, walking etc) to see if the drugs are prolonging flare up times. I seem to be getting about 10 mins extra on this Amitriptylene 25mg.
Running is pretty much the same as cross-training ~15-20 mins before flare up.

When I was prescribed this Amitriptylene I as told to increase activity. I'm not sure if this was so that activity would 'reset' the sympathetic nervous system response; so that when I stop taking it, the nerves will have remembered the correct function?

What were your experiences like with this drug? I am very interested to hear as I will stop taking it this week.

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Old 10-26-2011, 08:14 AM #5
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I never actually took amitriptyline, so can't help you there.....maybe others will chime in.

Regardless of what we take, it is important to "keep moving" as best you can. Inactivity is the worst thing for CRPS. My mantra is "use but don't overuse".
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Old 10-26-2011, 08:59 AM #6
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I never actually took amitriptyline, so can't help you there.....maybe others will chime in.

Regardless of what we take, it is important to "keep moving" as best you can. Inactivity is the worst thing for CRPS. My mantra is "use but don't overuse".
Thanks for that. I've been pretty active so hopefully that has helped out. I usually know when to stop, when most of my feet have swollen up. Will be interesting to see what these two specialists come up with. I'll of course report back with what they suggest.
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Old 10-26-2011, 11:52 AM #7
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Thanks for that. I've been pretty active so hopefully that has helped out. I usually know when to stop, when most of my feet have swollen up. Will be interesting to see what these two specialists come up with. I'll of course report back with what they suggest.
I'm not sure if we can post video clips within posts here, but I'll try and post a short clip of my toes during in a flare-up. Would be good to get your thoughts and comparisons with your own toes, if that doesn't sound too gruesome!
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Old 10-26-2011, 01:02 PM #8
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I'm not sure if we can post video clips within posts here, but I'll try and post a short clip of my toes during in a flare-up. Would be good to get your thoughts and comparisons with your own toes, if that doesn't sound too gruesome!
** This blog I'm setting up can be found here: http://crps-in-toes.blogspot.com

If anyone would like an account setting up to add your story and anything else you want to add, change, edit etc. Just private message me your email address and I'll set up an account for you.
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Old 10-26-2011, 01:59 PM #9
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I'm not sure if we can post video clips within posts here, but I'll try and post a short clip of my toes during in a flare-up. Would be good to get your thoughts and comparisons with your own toes, if that doesn't sound too gruesome!
Looks like I can't post youtube clips in the forum, but here's a link to a short video of my toes during a CRPS flare-up.

http://www.youtube.com/watch?v=aHy7aHOMQpQ
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Old 01-06-2012, 11:46 AM #10
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I Have the same problem as yourself, would be good to get intouch.
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