Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

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Old 10-26-2011, 02:58 PM #1
mnp2011 mnp2011 is offline
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Originally Posted by mrsD View Post
I think you should look into erythromelalgia ... similar appearance on the skin, and the burning.

Taking adequate magnesium containing foods or supplements often stop these temporary reddening episodes.

http://en.wikipedia.org/wiki/Erythromelalgia

Dr. Jay Cohen MD had this and fixed his own with magnesium.

http://medicationsense.com/erythromelalgia.html

Also I wonder what antibiotics you used when you had your infections in the toes? Ciprofloxacin or Levofloxacin? These drugs can cause nerve damage. Flagyl (metronidazole) and Zyvox also cause nerve damage.
Hi there thanks very much for your input. I will definitely look into Erythromelalgia - not something that's been suggested yet.

The antibiotics I had were Flucloxacillin, taken for two weeks. I had them years ago for another problem and had a surgery after taking them on my lower back and that didn't cause any problems.

I was thinking it may have been the anaesthetic injections I had prior to the nail surgery. I had three in each toe, but not sure if that may have also caused nerve damage.
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Old 10-26-2011, 03:29 PM #2
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Hi there thanks very much for your input. I will definitely look into Erythromelalgia - not something that's been suggested yet.

The antibiotics I had were Flucloxacillin, taken for two weeks. I had them years ago for another problem and had a surgery after taking them on my lower back and that didn't cause any problems.

I was thinking it may have been the anaesthetic injections I had prior to the nail surgery. I had three in each toe, but not sure if that may have also caused nerve damage.
Just having a quick look through various sites and Erythromelalgia does seem to very accurately describe what I'm feeling and the triggers are the same. Thank you so much for getting in touch about it. I will suggest it to the two specialists I'm seeing this week and next week.
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Old 10-27-2011, 01:22 PM #3
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Just having a quick look through various sites and Erythromelalgia does seem to very accurately describe what I'm feeling and the triggers are the same. Thank you so much for getting in touch about it. I will suggest it to the two specialists I'm seeing this week and next week.
My situation just got a lot more complicated today. I had a paediatric surgeon (friend of a friend) review my case, photos, images, etc and he strongly stated it was not CRPS but Osteomyelitis (bone infection) caused by the surgery. So I'm having an X-ray first thing tomorrow morning to see if there are signs of damaged bone, then off to see the pain management CRPS specialist to see what he says. Then after that try and sort out (more) blood tests to see if there is indeed an infection. All happening.
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Old 10-27-2011, 02:22 PM #4
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mnp, I viewed your video. Strangest damn thing I've ever seen. Very weird how when you touch the surface of the skin, it goes white. Mine STAYS red, no matter what you do. Except sometimes it gets redder if it's at all aggravated!

I too would explore all avenues so that you are sure you have the proper diagnosis.
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"Thanks for this!" says:
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Old 10-27-2011, 02:37 PM #5
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mnp, I viewed your video. Strangest damn thing I've ever seen. Very weird how when you touch the surface of the skin, it goes white. Mine STAYS red, no matter what you do. Except sometimes it gets redder if it's at all aggravated!

I too would explore all avenues so that you are sure you have the proper diagnosis.
Thanks for that info birchlake. That could be a key point when seeing this specialist tomorrow - if it stays red or not upon touching the surface. I'm taking the video clips too so hopefully he'll be able to accurately assess whats actually going on.
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Old 10-27-2011, 07:53 PM #6
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mnp, you are a student of this game and that is what is needed to figure it out. As they say, "the devil is in the details".

Knowledge is power. That is the beauty of this forum; it increases our knowledge base.
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Old 10-29-2011, 10:28 AM #7
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Originally Posted by birchlake View Post
mnp, you are a student of this game and that is what is needed to figure it out. As they say, "the devil is in the details".

Knowledge is power. That is the beauty of this forum; it increases our knowledge base.
Lots of new details and hopefully some knowledge to add to the general base. Saw a pain specialist yesterday and he said it didn't look like CRPS per se. So I'm organising a bone scan (x-ray tracers injected into the blood and scanned for bone cell activity, from what I gather) to see if there is an infection and more blood tests. X-rays didn't show any obvious de-calcification or much visible damage. Seems like more of a sympathetic nervous reaction caused by something and triggered when I walk, run, cycle and by heat and alcohol.
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