Originally Posted by dreambeliever128

I've not heard of the nerve being cut with TOS, I did want to say though, RSD comes with TOS surgery more often then not. You will see a lot of the TOS forum people eventually move over to here due to the RSD. I spent years on the TOS forum before coming here.

Drs. do TOS surgery differently. I had my first rib taken out on the right side by a Dr. in Denver that just went through the neck area, some cut people up quite a bit for the surgery. I have seen 2 done differently then mine.

There is no cure for the TOS either, the surgery usually just helps relieve some of the pain.

Ada

Originally Posted by bobber

Momof4
You are correct,,there's alot more litature on RSDI than RSDII {causalgia},,this is what I have,,RSDI is what most people have and what is most seen in clinical trials ,RSDI ussually prgresses slowly or in some cases ,levels off,or stays in 1 or 2 limbs or in some cases it will stay in one limb,,theres alot of cases where RSDI will progress thru out the body at a slow pace thru years,,,,research shows that RSDI ussually comes from the form of a injury, such as twisting an ankle,,trauma to a body part affecting a nerve doing damage,,where as RSDII its normally causes by bad trauma to a nerve {QUOTE} from a bullet wound or knife injury ,,,,,,,but not alaways,,other ways that are very common to contract stage 2 is ,arthroscopic surgery to the knee and hip are very common,,,one of the keys to causalgia is bad nerve damage[severed] or entrament,,,,,,,,,,,this is one of the main reasons why its aggressive,,there is still stimula comeing from the nerve,,the spread is so agressive,,,,to answer your question,,,ketamine treatments are sometimes used to re-boot the nervous system,,,but,,in my opinion,,,if you re-boot the system and the nerve entrapment is still there,,,it will probually come back after the body relocates the entrapment,,,im not saying ketamine treatment is useless for RSDII,,,,IM going by what ive read,been told,and own personal therory,,I do know that calming the entraped nerve will slow down the progression,,nerve surgery to free the nerve up is not being done very often anymore in fear of making it worse,,but it is still practiced..The surgeon ussualy free's up the nerve and then places the limb in a boot so that scar tissue doesnt set in from early return of use of the limb,,,,,,there is some information out on the web,,,,,also several studies that ive read[ put in the search engine,[stages of RSD},,,,,what progression that one person with RSDI will get in several years,,,a person with RSDII will get in a matter of months,,,,RSDII IS RSDI on steroids ,,and very hard to treat or control,,

Originally Posted by RNcrps2

Sukadog, Dont worry. Maybe yours was found and treated early enough to keep it localized. Mine wasnt acknowedged til a year so it was already chronic. That is why it is so important that all Drs. are updated and aware of RSD(especially Ortho!) because it is known now that if treated within the first 6 months you have a better outcome.

Originally Posted by RNcrps2

Tell me. I know the difference and i know they are treated the same BUT why when i read treatment trials most/all are using CRPS1. I actually have yet to find one that says using CRPS2 patients. I have read Dr. S last paper and i believe it had people with nerve injuries but they were not picked to receive ketamine they got the placebo(I know it was a double blind study so it wasnt purposely picked that way)
My question is- Is it because when a nerve is involved the results/outcome wont be as good as with CRPS1? That logically makes sense to me because if there is no nerve damage than treatments might work better. Whereas if a nerve is damaged even if ketamine works on the CRPS there is still a nerve injured . Has anyone read an article using CRPS2 patients? momof4