Thanks yes I have thought about it. Also about going to Tampa for Dr K and ketamine or Mayo because of my eyes,head and legs combo that I may have another condition with PN and RSD too. I have seen Dr Stanton Hicks and Dr Carden both are known rsd docs and took part in the Cleveland pain program for short time till my pain got too high. Anyhow my experience was not the best. I am so tired of traveling for docs to be let down.
Up till about 2 months I was making slow progress but then something happened and I went backwards to worse and going back
I feel so let down by doctors in general and have seen so many on top of these few like many I know understand.
Thanks trying to figure something out and push myself to do something. I am on my own right now through this so I appreciate everyones support.

My GP is trying to keep me alive. Just knowing he's there and willing to help is half of what I need. He listens and responds. Good doctors are a big part of dealing with this but the biggest is learning your triggers.

Thanks. I wish I had a doc who would listen. I have seen so many and I feel I have no one to count on. On Wed I called my psych cause my apt is not till the 15th. So I left a message on her persnall voicemail. I said it was not an emergency but mentally I am really starting to struggle and so if she gets and earlier opening could she call me. Well I thought she would of called but nothing. It is really hard for me to reach out. So then I was going to start with someone new but so draining to keep telling your problems from the start and new docs. This is how I feel about gp's and all my docs. Just at a loss right now on what I should do. Thank you for sharing.