I can't even count the number of "romantic" meals I've ruined It's gotten to the point that anytime I get up and go to the bathroom when we are out and take my purse with me my boyfriend is always "Did you throw up" when i get back (I keep a toothbrush and toothpaste in my purse so I can minimize the damage to my teeth). I've told my boyfriend he should stop making me order food, because it's such a waste of money!

I'd read up on anything you can find, and try whatever you can. The "great" thing about crps is that what works for one person may not for another So it's really a lot about trial and error and finding out what will work for you. I can't count the number of times I've been told that opiates won't help for neuropathic pain, yet that is the only medicine I've found that gives me any measure of pain relief.

The strange thing is that even with me loss of appetite and nausea, I don't really seem to be losing any weight Sigh . . . .

When I get to a high pain level I get nauseas as well. I try to keep saltines on hand it seems to help me. I have been told that bp increases for some too. Also some meds do this. I know sometimes when the pain gets so high I feel similar like I don't know what to do cause it seems endless and out of control. I agree with the deep breathing. Also what other things may bring you comfort. It sounds dumb but for me even this soft blanket helps. Sometimes listening to music. Baths for me help too.I'm not sure where your rsd area is but for me sometimes moving or adjusting my body helps. Sometimes not but if I have been in one position too long my pain increases so moving helps but it is doing it which is less then pleasurable. Lastly self talk I remind myself I have had times like this before and I got through. If you want an email buddy I am here too. The many good friends I have met through here help so much. Hang in there and take one day at a time or even one hour

Thank you holly , kim and sandy for your input. I will definitely try. It has been so bad that all i do is cry. I don't have any family here so pretty much its just me dealing with this. My husband works days and he really don't know how to deal with this. I left a message with my pm dr and he called me back this afternoon. I told him that my husband and I did not agree with the scs. I asked him what are my other options. He said there is not much since i tried all the drugs out there. The only thing i did not try was cymbalta but he mentioned that cymbalta has the same side effects as the others. I don't know I'll try it..Thanks so much for your input. I am still suffering in pain im just going to lay it off. Do any of you ladies know of any other drs in NY?

My daughter has been diagnosed with abdominal RSD and suffers a lot with nausea. I recently ran across the following on the RSDS website.

http://www.rsds.org/1/publications/r...ummer2008.html

She will soon be having tests done to see if this might be a treatment option. Just wanted to share this as it is often times difficult to find information about this RSD complication.

Pain pump??
Info & link to our new Subforum for SCS and Pain Pumps
http://neurotalk.psychcentral.com/thread114132.html

Hi mom
Im so sorry to hear about the pain,,,some how try to find peace,,Im struggling with the same issue and am sure everyone else too,but sometimes ,it gets our zeal and joy,,,try to watch out for triggers,,my our caffiene and sugar,choclate,and lunch meat,,sodas,,and tea..I have a bad habit of drinking to much to boost me to get up to do somethiong,,im a oxymoron trying to find peace,,,what i love to eat to take the thoughts away of haveing RSD , is what gives me flares,,,,Talk to the Lord,,he is my refuge[,psalms 46;1 my ever help in trouble,,,,,,,,,,,bobber

I hear you love, I have a big supply of Jolly Rancher candy to help with that pain nausea. My daughter is pregnant and she used "Preggie Pops" to help with her nausea and they aren't bad. I have used them in situations where I can't get to my JRs. You've come to the right place to get advice about anything RSD/CRPS pain...everyone is great here and this board is a blessing in my life. Someone hooked me with the relaxation station called last fm http://www.last.fm/music/Relaxation .....it has done wonders for me.

that is the cutest name; that being said I betcha you bake a bunch & standing on your feet a very whole heck of a lot? If thats the case my dear, I will note a few things I have learned over the years from the professionals in pain management & physical therapy:

1. THE FLOOR IS YOUR BEST FRIEND: yes, being floored, prone and doing your Feldenkrais stretches & exercises, diaphramatic breathing is on the floor on a swiss ball is essential. Peter Edgelow has a great CD & program to keep our system healthy, circulation moving & relaxation. The snippet Jo sent is also great. Did you hear the music in the back ground?

2. RELAXATION: I also betcha you are a mover and do-er kinda person. Thats ok, people who dont do, dont get fullfilled with life & RSD. Listening to the relaxation, zen music is the best thing you will find for relaxation oand to take you away. No matter what you are doing baking, bathing, need to calm the nervous system to calm the pain BREATHE, RELAX while listening to the zen music. Bed Bath & Beyond carries some tapes which can be ordered on line & sometime free shipping if you join their site. Our site is in the process of interview hundreds of CDS & will offer cd's & relaxation for pain.

3. BREATHE: again learning diaphramatic breathing relaxes the heart, organs, spine, head, neck, autonomic & sympathetic systems, the mind & soul. Deep diaphramatic breathing is essential. Notice the next time you bake. Are you focused & breathing? I bet not. Anything our minds are focused on the breathing stops.

4. WEATHER: if cold or heat creates havoc make changes in your environment. Dry heat from the heater can suck up all your hydration. Cold can tense the muscles, rain can make our sympathetic system go crazy like a weathering stick. Contrast showers, cold packs, moist or dry pads. ALways switching to make your self comfortable depending on environmental changes. Heat creates so much pain with me I have to sit in an ice skating rink. Thats what my internal themometer is acustom to.

5. HYDRATE: I'l bump up the post from this last week. Valuable leason learned. Remember forced home heat sucks you up. HYDRATE, HYDRATE, HYDRATE

6. MOVE: yes move your sweet ****. I thought the professionals were crazy. How can I move when I cant move? It so makes sense now. I am on a daily plan of the stationary bike 3 times a day. If you can only go 5 minutes at the beginning its a start. Stay away from resistance training on the stationary bike until your muscles can tolerate. Somedays I can do 30 minutes at one sitting, some days I can only do 10 minutes very slowly. Stationary biking takes the weight off your head neck and shoulders. Cheap recumbant bikes like mine can be purchased at Walmart, target and on line. Doesnt need to be expenseive. *And when your system shuts down from pain, get up on the bike. I swear, it works, it works AND YOU CAN DO IT

I'll post more, gotta get off this comPOOPer.

xxoo

Cymbalta has definetly helped me with the burning pain. I woild highly recommend that you try it-Fondly-Carol

guys, i am sick every day.. sprite used to do it for me but with the topamax now i cant even drink that without it burning my mouth. I got sick at work this morning and they sent me home.. its of course going to count against me. but oh well. it was either that or pass out.. i opted for the lesser of too evils. the pain does that.. i am going to try those breathing exercises though. see if they help, but im a smoker. so i might just pass out from that..lol.. i have been on nausea pills and they didnt work. i just have to handle.. i can keep from getting sick.. took me a year to figure out though.. sometimes.. not always though.lol. mom just relax were all here for ya.. hope it all works out.. try saltines and sprite and see if that helps ya? or 7up maybe?