Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

 
 
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Old 02-26-2010, 08:51 AM #6
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Join Date: Jul 2007
Location: Yorkshire, UK
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ali12 ali12 is offline
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Join Date: Jul 2007
Location: Yorkshire, UK
Posts: 2,463
15 yr Member
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Hello Kymom and Welcome to NeuroTalk! You will meet many great people here who i'm sure will be more than happy to help you in any way they possibly can so please don't hesitate to ask any questions you have!

I'm so sorry to hear about everything that your son is going through right now! I've just turned 15 and have had CRPS in my left leg and both arms since I was 12 years old so I DO understand some of what your son is going through and how horrible it is dealing with such a scary condition at a 'young' age!

As others have said, your sons fairly 'lucky' that he's been diagnosed so soon. CRPS is best treated if it is caught within 6 months.

Personally, I wouldn't rush on getting the SCS implanted. I've read such horror stories about it and heard people on this message board mention spreads etc that I don't think it's worth the risk! Of course, everyone responds differently and it may be something you want to look into in the future but personally, I wouldn't have it.

Should your son decide to try the SCS, make sure you read up all the pro's and con's before rushing into everything. It isn't a cure - it will only reduce the pain somewhat if it is going to work.

If you have any questions, please feel free to PM me. I don't mind talking to you or your son at all! My mums happy to talk to you also from a parents point of view so if you want her email address, let me know.

Best wishes to you and your son!

Alison
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