Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

 
 
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Old 03-07-2010, 10:26 PM #11
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I am so sorry for your son and for you because I know how it hurts a mother's heart to have her child hurt. My daughter is 15 and was diagnosed when she was 12. She had the blocks one a month for 6 months but they did not help her. She has ketamine epidurals about once a year and those really keep her stablized. Her doctor will not do the SCS until she is done growing. He said the leads will move as will the battery pack if she is not finished growing and the result will not be the same and can cause increased pain or pain in other places. I know that time frame is later for boys, too.

What a great son to have such a supportive mom! He will need you to be there for him as time goes on. Hang in there and pm anyone of us if you need to.
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