Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


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Old 03-04-2010, 12:37 AM #21
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Default crazy right

i know. its unheard of.. I met with both my attorneys this afternoon and they sound very promising.. my suit should be done hopefully this year.. but we going for full medical til i die. i wont settle for less. and it will drag on until i know for sure how much damage long term i am going to sustain.. We talked about that.. I will have a doctor keep checking me over regularly for progression.. I want coverage.. Out of pocket expeses is one thing, but meds are high dollar and i am still fairly young at 35. So we are talking very long term..Its written up now that i can only work part time and it sucks.. i love to work. enjoyed it alot. but thats just going to keep getting worse as this disease progresses. I was denied for ssi, first time through, so they are appealing for me.. So hopefully they will get that through, cuz im broke as broke can be..lol
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Old 03-04-2010, 07:42 AM #22
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Originally Posted by olecyn View Post
Pain & Brain FOG - still looking for the article found. This one will do for now...
http://www.drlwilson.com/Articles/brain_fog.htm

Get an attorney ASAP everyone. Attorney's work on a 15% or more now retainer fee. And they dont jump through hoops. You still have to manage ur own case, then yell & scream. Its not easy. My case is going on 11 years with 2 or is it 3 dep's now with no end in site. Just recently the opposition reviewers (no medical shield, just office workers) are denying medications, procedures they having been providing for. I get all the medical references needed & still nothing gets done.

It is not you. It is ALL insurance company's including Medicare. Health care has been reformed without the American people being told. Letters have been sent out by AARP (who just received millions by the government), Veterans & Medicare patients denying procedures across the board. What was in the pipeline for surgical procedures is no longer being approved according to the letters. Everything is being cut by 20-21%. Physicians are being sent letters in addition to the patient telling them the insurance company is no longer approving a previous approval.

Would you like to pay cash or by credit card? big sigh..
Dear Cindy -

I understand your frustration, but cannot agree with a significant portion of what is said in the webpage you've linked to, written by one Lawrence Wilson, MD, in which every point is asserted without citation or reference of any kind, and by an author who has never practiced medicine, according to his own C.V. To tell the truth, he sounds as close to Adelle Davis http://en.wikipedia.org/wiki/Adelle_Davis as anyone I've heard in long tiime.

In saying this, it is not my intention to be confrontational with you. But the site to which you have linked appears as a whole to be commercial in it's nature, and should be flagged as such.

Mike
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Old 03-04-2010, 07:32 PM #23
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Originally Posted by olecyn View Post
Get an attorney ASAP everyone.
Just curious - why? Are you saying everyone with CRPS, or everyone with CRPS who also suffers from brain fog, or just everyone who has any type of medical issue, should get an attorney?
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Old 03-05-2010, 01:23 AM #24
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Wink wc

everyone who got hurt at work. peppermint.. i got hurt at work hun.. thats why hes saying that to me.. especially how they treated me.. alot of times it does happen at work and they mistreat you or misrepresent you.. you have to protect yourself at all costs. its expensive to treat..
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Old 03-05-2010, 02:07 AM #25
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Good catch peppermint. I was referring to patients hurt on the job. One track mind here. THANK YOU for bringing that statement to my attention. Appreciate it.


Quote:
Originally Posted by peppermintpatty View Post
Just curious - why? Are you saying everyone with CRPS, or everyone with CRPS who also suffers from brain fog, or just everyone who has any type of medical issue, should get an attorney?
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Old 03-05-2010, 02:11 AM #26
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No confrontation taken Mike. You seem like the expert here. Just trying to help & I guess I didnt. Not being paid by the author to quote his url.

Quote:
Originally Posted by fmichael View Post
Dear Cindy -

I understand your frustration, but cannot agree with a significant portion of what is said in the webpage you've linked to, written by one Lawrence Wilson, MD, in which every point is asserted without citation or reference of any kind, and by an author who has never practiced medicine, according to his own C.V. To tell the truth, he sounds as close to Adelle Davis http://en.wikipedia.org/wiki/Adelle_Davis as anyone I've heard in long tiime.

In saying this, it is not my intention to be confrontational with you. But the site to which you have linked appears as a whole to be commercial in it's nature, and should be flagged as such.

Mike
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Old 03-06-2010, 10:40 PM #27
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Originally Posted by peppermintpatty View Post
I am sad to say that I too am suffering from this symptom. It is one of the most scary symptoms that I have, to be honest. I feel like I'm losing my mind some days. I do forget things occasionally, but it's affected me the most in word selection. I'll be in the middle of a sentence & simply cannot place the word I want to use. It's quite frustrating to me, as I am young & was relatively healthy before all of this hit me.

I would say that I suspect the medicine, but I started out on Neurontin/Effexor and over time have switched to Lyrica/nortriptyline, and the issues have not changed, so I really don't know. I have read that it is a symptom of the CRPS itself, but I'd prefer to blame it on the meds. I just really don't know.
Hi peppermintpatty, It's good to have you with us. I know those lapses and grasping for words are so frustrating. I've had RSD 15 years, and it's my opinion this is due to the disorder and not meds. It's because RSD affects part of the brain called the limbic system. That controls short term memory, and decision making process. There has been much written on it. Perhaps, looking up Limbic System would help.
Dr. Hooshmand on rsdrx.com has a lot to say. He practiced 40 years-RSD and on his website at puzzles list-there are 146 questions and his answers. I know he discusses this. He is retired, but has referred patients to another Florida Dr.
Take care, and let us know how you are doing, loretta with soft hugs
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Old 03-06-2010, 11:33 PM #28
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Default Brain Fog

I am having serious memory word finding and problem solving troubles. The other day I couldnt remember what day of the week it was and it sent me into a panic for about a minute....it is really bad!!
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Old 03-06-2010, 11:39 PM #29
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debhub.

I agree. IT SUCKS! I have a hard time finding the "right" words for the most mundane things. Makes me feel like I'm losing my mind.
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Old 03-07-2010, 12:35 PM #30
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Default and the worse part is,,,,

I am a speech therapist working with adults who have cognitive and word finding difficulty-lol
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