Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


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Old 03-06-2010, 09:03 PM #1
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Debby Debby is offline
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Sandy,
The accusation was a long long time ago...........back in late summer 2004. It turned out to be a HUGE mix up on their part not on mine. And like I said the head of their pain clinic, who also writes & lectures for one of the big pain web sites(I think it might be the American Pain Foundation) gave me an apology & wrote a letter apologizing to my primary care physician. They had called them & told them I was a potential drug seeker so it had started to spiral out of control but the minute I found out I got the ball a rolling to straighten them out right away. But like I said it is a teaching hospital so I believe I will call their neurology department & find out who they have RSD patients see. I sure hope there is some one.

I am hoping that SGB's will help for the time being. I have Medicare only so I have no idea what lidocaine infusions will cost me...........

Debby
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Old 03-06-2010, 09:19 PM #2
loretta loretta is offline
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Originally Posted by Debby View Post
Sandy,
The accusation was a long long time ago...........back in late summer 2004. It turned out to be a HUGE mix up on their part not on mine. And like I said the head of their pain clinic, who also writes & lectures for one of the big pain web sites(I think it might be the American Pain Foundation) gave me an apology & wrote a letter apologizing to my primary care physician. They had called them & told them I was a potential drug seeker so it had started to spiral out of control but the minute I found out I got the ball a rolling to straighten them out right away. But like I said it is a teaching hospital so I believe I will call their neurology department & find out who they have RSD patients see. I sure hope there is some one.

I am hoping that SGB's will help for the time being. I have Medicare only so I have no idea what lidocaine infusions will cost me...........

Debby
Debby, I remember you and it is good to hear from you again, but NOT these new symptoms. Have you thought about RSDSA.com I went to their annual meeting last year was great. Jim Broatch is always so helpful. Give them your zip code and may have a specialist close to you. Also, zip code,
you'll receive name and phone number of group support leader. Often they know who is close and good.
I'm sorry you have had some rough times. We are all happy to hear from you and happy to support you. Let us know how things go, your friend, loretta with big soft hugs
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