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Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

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Headache whats a person to do?

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Old 03-16-2010, 11:40 AM #11
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Default So Sorry!
I've been praying for you...... this is discouraging......

Has anyone mentioned the possibility of spinal leak causing this? It's hard to accept that they are putting the blame on how your head was 'positioned' during the surgery!

......welll............I'll keep praying, that's all I know to do.

you certainly shouldn't have to be suffering like this!

Rae

PS.....as trivial as this may sound,.....certain muscle relaxer's I've tried caused headaches.........
not sure what your meds are ?
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Old 03-16-2010, 12:24 PM #12
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Quote:
Originally Posted by daniella View Post
I am not sure about the brace. I would ask if you have rsd in the neck for ex if it should be in something like that. I know and this is different but I wore an airboot that made things worse because I actually needed more movement rather then less. Now yours may be totally different but a thought that came to my mind. Have you tried topomax? I know some of the peole in the pain clinic who had severe head aches were on it. I am assuming with scs you can't have an mri but I was wondering before if you ever had one of your brain? I hope you feel better
SCS??? I assumed when you mentioned "stim" unit, you meant a TNS-type unit for pain, not an implantable. Daniella of course then, is right. Very likely cannot have an MRI (but check with your rep) although you could acheive similar findings with contrast CT...
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Old 03-16-2010, 04:11 PM #13
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yes its the SCS so I can't have a MRI. I am suppose to schedule another nerve block in my neck. I can then talk to him about a scan. I take orphenadrine for my muscle relaxer. Thanks!
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