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Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS) |
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#1 | ||
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Junior Member
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Hello,
Does anyone else have the inability to regulate their body's temperature ? It seems I'm either freezing cold or sweating like I'm in a suana. Is this a product of RSD or could it be something else. I've been battling RSD for about 3-4 years now and can't seem to get lasting relief (from pain meds, etc). Now this has started about a month or so ago. I just seem to kind of get used to everything that goes along with this and then another thing gets added to the list of symptoms ? ![]() Sincerely, Tony |
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#2 | ||
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Welcome Tony.. We have a great family of caring supportive people here....Yes... I am in the same boat and we have had many posts here that describe exactly this..our temperature regulator is off..way off..In a matter of seconds I turn to water..my whole body..I first feel a hot rush and bam... I am drenched. More times I am sweaty than cold but the cold does happen from time to time.. We ahve talked about this here before..many have the same symptoms... KS |
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"Thanks for this!" says: | Kakimbo (03-07-2010) |
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#3 | ||
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Senior Member
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Hope this helps. I've had this 15 years and full body plus internally. One of your new friends, loretta with big soft hugs ![]() ![]() |
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#4 | |||
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YUP YUP YUP..............that is part of it too.....this same basic discussion has been going on & off since I first came to the site back in 2003.........I like the rest here.........one minute I am comfortable & then all of a sudden out of the blue I am warm & start sweating profusely. Having popsicles around helps cool you down internally. I use to get so hot I would throw up constantly for no reason. Luckily that has passed. But popsicles helped that also. If I could eat one quick enough then I wouldn't throw up.
Now I drink an ice cold root beer or eat a popsicle to cool from the inside out. That helps relieve the sweating quicker than anything else I can do. Even going outside to cool off during the winter doesn't help as much as cooling from the inside out. BTW I live in north central California up on the west slope of the foothills to the Sierra Mtns. We get a little snow now & then here but it isn't that cold all the time. Taking a shower is almost not worth it. I take a luke warm to a cool shower, not warm or hot & even in doing that I will come out of it sweating all over again. But atleast then I can say it is clean sweat *LOL* Debby |
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#5 | ||
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RSD affects the vasamotors and sudmotors....circulations and sweating,,,,,,so,, No your not out of the norm,,welcome to the world of RSD ,the disease thats an oxymoron and consumes ones life,,,,,pray,,,pray.....then pray to the Lord some more
Last edited by bobber; 03-08-2010 at 12:25 PM. |
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"Thanks for this!" says: | loretta (03-08-2010) |
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#6 | |||
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Junior Member
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Yeah sad but true.. Mine is im always cold.. Never hardly sweat.. But i live in Iowa where its cold right now.. So until summer im a popcicle..lol.. welcome to the family so to speak.. Sorry for your reason to be here.. Its a crazy disease.. im fairly new as well. but were always willing to help..
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__________________
Barbara |
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"Thanks for this!" says: | loretta (03-08-2010) |
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#7 | ||
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Magnate
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For me basically my feet feel frozen a lot but I have begun getting the burning. It is hard for me to regulate myself cause if my upper body is hot my feet can be frozen at times and I can't tolerate a fan blowing even on my upper body cause I can still feel it on the feet. I am not sure if some of my burning is now that I am living in FL. I feel that with all extreme weathers my body feels it to the extreme. So if it is cold I go numb like if the normal person were putting their feet in snow. If it is super hot I start to get the burning feeling where others would just be uncomfortable. The pain doc I see said that the meds and other treatments are supposed to help with that. Right now I have not seen that. Feel better
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#8 | ||
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Junior Member
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Yes I have the same problem. There are times i have to peel off all my clothes and then the next minute im freezing with throbbing piercing pain. I constantly wear gloves and i have to cover my feet and my arms. My pain level is bad cold or hot. So either way im screwed.
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"Thanks for this!" says: | Kakimbo (03-10-2010) |
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#9 | ||
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Junior Member
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Dream - That's interesting, I recently( past few months) have been switched to methadone. I am going to ask the doc about this on Thursday at my next appt. Altough I did have this problem before switching pain meds it does seem to have gotten worse. Thanks.
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#10 | |||
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Magnate
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If you read up on Methadone side effects it mentions sweating. I would say other meds do the same thing also.
I still keep it around for my worst days. You have to make a decision about the sweating or the pain. I wouldn't switch the Methadone for any other pain meds.I was on it for 6 years and I got the best relief with the least side effects. Type in Methadone side effects and you will see that sweating is a side effect of it. Ada Last edited by dreambeliever128; 03-09-2010 at 05:58 PM. |
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