Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

 
 
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Old 03-06-2010, 02:02 AM #1
Kakimbo Kakimbo is offline
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Join Date: Sep 2009
Location: Galena, MD
Posts: 280
15 yr Member
Kakimbo Kakimbo is offline
Member
 
Join Date: Sep 2009
Location: Galena, MD
Posts: 280
15 yr Member
Default J. Hopkins wants to do a study on me!

Hi everyone!

I finally was seen at John's Hopkins Univeristy yesterday. YAY! They want to install a SCS next month and also want me to be a "trial" patient for them!

Want me to be their example of what does and does not work for RSD. I was very happy to know that all of my doctors are experts on our condition. I was taken very care of and treated with utmost respect. It was tremendous! I now have a new respect for doctors who actually research different conditions and seek the best treatment for their patients. Just incredible!

I am still a bit leery on the legality of it all. They will compensate me. Which I don't worry about (I would rather do it to help someone), I know it will be public. (No problem). No meds will be given. Still; there is a nagging doubt. I think fmichael would really help me with this!

Hope all goes well!

Kim
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