Originally Posted by AintSoBad

Hello Al,

I don't know of anyone there in particular.
Go to rsdsa.org and they have a doctor finder.

Short of that, shop, as if you're shopping for a specific commodity.
A doctor familiar with and who treats RSD/CRPS.
That would probably fall under Neurologist. Try your hospitals, and call the Chief of Neurology's office first.
(Many doctor's don't like to treat such Chronic conditions, for lack of improvement, and it's frustrating for both the Doctor, and the patient.)

I wish you, Your Son well, but, this is possibly a lifetime job, your best bet is to be very strategic, and looking under every rock for help for your Son!
The earlier this is treated, the better the long term outcome.
BTW, I've had rsd for 26 years, and went undiagnosed for 7.

Get him to SOMEBODY, be it a Neurologist, a Pain management doctor, or, chiropractor that can give him some relief. (I got by those 7 nasty years with a Chiro).
Keep him in the "system", so that these people can always be on the 'lookout' for more and better help!

Pete
asb

Originally Posted by keep smilin

I am so sorry for your son's diagnosis and for you too... This is such a desvestating disorder and you have our support at all times..don't leave our side here..This is a wonderful forum... educational and supportive... as far as finding a treating physician..how about a recommendation from your previous Dr. ?? Or as Pete said log into the RSD.org site..much information there..I see a Pain management Dr. but a neurologisit is good also.. We have our hands full living and working with this illness it can be a scary run but not with us by your side... Do your homework and don't stop until you feel comfortable..then read some more!!

Let us know what we can do for you on here~!!!!

Hugz, kathy