I appreciate all the insight and replies from you all,,This disease has invaded this region,,,The pain started as one random sharp pain in the left perineum area,Then there was a constant dull ache,followed by over the course of a few weeks,pressue in the perineum and pain when I would cough ,,Pain also in the end of the urethra after urinating ,like a UTI,,I went to a colon and prostate MD,,No sign of a fistula or fissure[Ive had both in the past},,But now,the whole area ,rectum,,perineum,scrotum,,burn like there has been acid or hot sauce on them,,and a red inflammed scrotum that comes and goes,,some penile area pain that is random,,I also had a rash come on my inner thigh that would come and go,,,and I had a rash that itched,,,And now theres spider veins forming on the scrotm ,,just like my feet and ankles,,,this is so terrible,,,I read on this site a year ago,where a man had RSD in his privates but dont rememeber his name,,I was really hoping it wouldnt affect the prudendal nerve,,but that is what has happened,,prudendal nerve problems can lead to complications in controlling your bowels and your ability of holding your urine and feeling the urine pass,,,I pray this doesnt happen,,I do have RSD in both legs ,feet ankles,hips lower back anmd buttocks,,Another early warning symptom that is was going into the perineum ,was Rash on inner theigh,rash on back of buttocks after lying down and getting up I could see it inflammed in the mirro,but would fade after a bit,burrning on the buttocks,that moved to the scrotum,,,cramping in the srotum,rectum, perineum area,,,,I will go see a urinologist,to rule out everything else,,,As the MD told me that I have all the signs of a UTI ,prostitis,fistula and fissure,,,but these were ruled out,,I really was dissmayed when the RSd rash,itch,spider veins and burning of the skin appeared,,I just pray that I dont loose my ability to control my bodily functions,,,,,,

Bobber -

Ouch! It isn't cheap, but this sounds like a perfect application for a compounded [made up a specialized pharmacy] analgesic gel. Mine is 10% Ketamine, 5% Gabapentine and 5% Lidocaine in an "OGEL" base. 500 ml's of the stuff costs just over $800 and I go through it in about 8 weeks or so, if I apply it to both feet just at bedtime (when for some reason the burning kicks in - as opposed to "deep bone crushing pain," etc.) and on those few occasions I have to actually wear shoes and socks. Other compunding pharmacies in LA have quoted higher prices, with one in Beverly Hills (of course) wanting three times as much!

After a pointed exchange of letters, Medco agreed to cover it, so long as I pay for it up-front and they in turn reimburse me, less the co-pay.

Basically, the stuff's tricky to put together without crystals forming that makes it uncomfotable to apply and less effective. And I'm advised that the equivolent of 50 ml's of ketamine isn't cheap. The guy who owns the compounding pharmacy tells me that he's basically billing me for his cost of materials along with 4 hours of his pharmacist's time @ $100/hour, with which I can't argue. The pharmacist who actually prepares it has been making it for me since 2003; I wound up at her current shop when the evil landlord declined to extend the lease on her dad's pharmacy, just as the clock hit June, 2008 and the building's been empty since. (Served the landlord right.)

Not sure if you can get it online, but just bear in mind how tempermental the stuff is to make if you see any offers that look too good to be true.

Others may have had better experiences in terms of cost, I don't know.

Mike

Thanks mike
someone else mentioned the same thing to me in a private PM,,,,another warning sign that this was coming on for both of us is , Foul smelling urine,,and with men ,pain in the tip of the penile after urination or ejactulation,,,its not a UTI,,{its from the Dr} refered pain from the prudental nerve which if you have prostatitits,,you have the same symptoms,,,,,,,,yeah im worried,,the other person at times lose their bowels and ability to control their bladder,,,,,do I need a script for that cream? and what is the name of the pharmaceutical who makes it? is it just for pain relief,or does it gives internal relief,?And from my research,,the pelvic floor muscle are affected with cramps with levator Ani-muscle and quadratus lumborum contractures from the RSd,Also it affects and attacks the prudendal nerve,,,,[great],,,,,,,,,,,,,,other early warning signs were, red rash on inner theigh,red rash and burning in lower SI joint,inflammed upper and mid buttocks,,then it walk on around underneath to the perineum,,that nerve travels via lower back thru the buttocks to the canal of the bundle of nerve in which the prudendal is affected causeing this,,,