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Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS) |
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Junior Member
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Hi...I was diagnosed with RSD back in 2007 after a head on collision I was in. I shattered my right arm. After the surgery I was diagnosed with the rsd in my right wrist.
Well to make a really long story short, I have tried everything possible from neurontin to lyrica and every possible pain narcotic there is. I am now trying a ketamine cream which I cant seem to put on myself due to the pain. I have no abnormalities to my skin other than the occasional motteling and some swelling in the right hand. I also have undergone over 12 stellate ganglion nerve blocks and I also have an internal spinal stimulator. The stimulator worked the first 4 months than ended up agitating the rsd. The incision in my neck from the surgery now has rsd as well. The RSD is now in my neck, my entire right arm, my lower right hip (where the incision is for the battery for the scs) and its also in my right knee. The worst of the RSD though is in my entire right arm. I have to put my arm in silk pajamas just to rest it down. Goosebumps sends me in tears. Everything seems to have not touched it or made it extremely worse. I am now at my wits end. My husband feels helpless and my family feels helpless...what do I do? There is no specialist here and all I hear about are the low dose ketamine infusuions have been known to put the rsd into remission. Any ideas? |
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