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Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

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Please give me advice on emergency room, really suffering

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Old 03-22-2010, 06:58 PM #1
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Default Hi,
After the 3rd time of going to the ER, my Dr. just told me not to go back, to just call him at home or at work. I was told it was all in my head. They had a lot of my info on file but it didn't matter, they still treated me like crap.

I think though it doesn't hurt to go once to see if they do treat you and how they treat you. You might run up on a Dr. that knows RSD.

Ada
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Old 03-27-2010, 02:34 PM #2
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Default Thank you so much heres why Ive been missing
well i haven't been to the ER yet but its been close, i have made an apt with my pm,, I'm frustrated there too. i am taking your advice and seeking the letter and my pm calling but here is what my pm said on the phone.. if it is during hours come here and i will give you something now i don't think he gets it. he is an hour and a half away I'm talking about needing days of help. the pain has kept escalating and I'm on my third lesion. that is where i have been taking ativan and lying very still praying my lesions don't turn in to ulcers. two on back and one on arm above elbow. this is what happens to me when pain is not controlled. lesions.remember i have a few bad ones when i was in crisis a few years ago. well the lesions get everyones attention. fist they biopsy them at the hospital and then once they are sure i don't have aids they usually treat me. God help us all. thank you all so much I will let you know what happens at pm. I appreciate your post s so much. sincerely dc
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Old 03-29-2010, 09:44 AM #3
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SO SORRY YOUR HAVING SO MUCH PAIN. i PRAY IT WILL GET EASIER OR YOU WILL GET AN EMERGENCY ROOM DOCTOR WITH COMPASSION AND WILLINGNESS TO HELP. TAKE CARE DENISE
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Old 03-29-2010, 05:11 PM #4
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The problem with PM docs is that ALL their patients are suffering. If they took those calls they'd be working 24/7. My primary doc prescribes my pain meds and is much more flexible than the PM I worked with. Have you discussed a morphine pump with your PM? After multiple hospitalizations I'd broach the topic.
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Old 04-16-2010, 02:03 PM #5
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Default morphine pump
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Originally Posted by LIT LOVE View Post
The problem with PM docs is that ALL their patients are suffering. If they took those calls they'd be working 24/7. My primary doc prescribes my pain meds and is much more flexible than the PM I worked with. Have you discussed a morphine pump with your PM? After multiple hospitalizations I'd broach the topic.
thank you for the suggestion of the morphine pump, i was interested in all pumps, but am not a canidate. I had a port for one month and it caused havoc with my body activated full body alloydina and infection my body rejected it. Dr. S said i am not a canidate for anything implanted. Unfortunately. But I appreciate the suggestion. dc
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Old 04-16-2010, 03:59 PM #6
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even when my PM doc called the ER and said that I was coming in and it was an emergent situation (steroid headache after a nerve block) they refused to offer me any relief. They just ran the CT scan and told me nothing more could be done. Hopefully you are in an area with a better hospital. I pray that your pain level comes down, and that a workable treatment is found for you. Lisa
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Old 03-22-2010, 06:04 PM #7
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Mad Have your PM dr. write a letter!!
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Originally Posted by CZZ74 View Post
Hi Everyone, Please help me. I have been many place on this 7 year journey with rsd but none as dark as this.

I am back to pre coma pain and then some,

I am hanging on by my fingernails day by day, trying not to dial 911 each day because I know they wont know what to do with me when they get me- but it is inevitable.

please send advise for emergency room. What can I do to get admitted for a few days of iv pain medication? My meds have not been working for several weeks now.

My pain management doctor has tried everything and almost killed me last week with a magnesium intravenous infusion which I had an allergic reaction to-
my brain was literally on fire for over 10 minutes, I kept calling out to my sister to get the doctor, my brain was like lava-

thank God she was there , I think I might have been brain dead other wise.

Please please give me your advice about the emergency room what to say to get care- they usually think i am drug seeking when they see my list of meds-
and please share with me if you have every experienced the brain burning episode,

there was very Little on the Internet about it except, mercury poisoning.

I do know that my body temperature had dropped to 91 degrees during the infusion.
(my pm was watching it with a tape)
so i had hypothermia. my brain was literally burring.

thanks so much for reading this and thank you in advance for helping me. dc
Jo*Mar is right. If you have a document from your pm doctor you have a much better chance for legitimacy. I have been in the ER many times and the letter has been a god-send. They will keep it on file. It just drives me nuts at how poorly we RSD people get treated. If you went in and told them you have cancer and the pain was excruciating they would be all over it. Most ER dr.'s are clueless on the facts of RSD pain. Another thing you should try if it happens during the day is have your PM doc call ahead for you. Then they will be expecting you. You have to be pro-active in making sure they understand you are legit. (Why do we have to prove our legitimacy all the time!!!?????) Arrrggggggh!
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Old 07-09-2014, 08:51 AM #8
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Jetjock

I could have written this myself, to the letter (the second part of this). AMEN, preach. I totally agree with everything you said and had similar conversations last night using "cancer" as a for instance in the same scenario, though I don't like doing that, sometimes you just have to say it out loud. Odd how your words were almost verbatim for what I said to my best friend last night.

Nice to hear it come out of someone else's mouth....I am sick of hearing myself talk, think...lol



Quote:
Originally Posted by jetjock1 View Post
Jo*Mar is right. If you have a document from your pm doctor you have a much better chance for legitimacy. I have been in the ER many times and the letter has been a god-send. They will keep it on file. It just drives me nuts at how poorly we RSD people get treated. If you went in and told them you have cancer and the pain was excruciating they would be all over it. Most ER dr.'s are clueless on the facts of RSD pain. Another thing you should try if it happens during the day is have your PM doc call ahead for you. Then they will be expecting you. You have to be pro-active in making sure they understand you are legit. (Why do we have to prove our legitimacy all the time!!!?????) Arrrggggggh!
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Old 08-01-2014, 09:16 AM #9
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Ain't that the truth? Lol I'm glad to hear someone else say it too.
Why is it that the most painful condition on planet earth isn't treated like a real, legitimate condition?
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Old 07-09-2014, 01:40 AM #10
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Default Short and Simple
RE ER's DON'T GO EVER!

My worst experiences with CRPS were the 2 times I had to go to an ER.. Instead check with your Pain Drs office about an emergency contact number someone on call for the bad times 'cause face it ER Dr won't know about CRPS, Won't do a damn thing that would really help till he talks to your Pain Dr anyway.. So save yourself the stress get that contact info then when the Pain Dr says get your butt to this ER they'll be waiting with meds or a shot to help you THEN go to the ER..
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