[keep smilin]

heartfelt message...For a very long time now..since my RSD began..I have really enjoyed this message ... I would love to give it to each of you as my gift to you.. here it is::::


Life is not about waiting for the storm to pass....Life is about learning to dance in the rain...


Thank you all for your friendships... support and the will to move forward!!


With love, Kathy

[Kakimbo]

Aww. KS.

Thank you! You have been an incredible inspiration to us. Your insight has guided us through the most difficult of times.

Please know that we appreciate you and truly wish the very best for you. You are a great friend to us! Thank you.

[keep smilin]

Originally Posted by kim ames

Aww. KS.

Thank you! You have been an incredible inspiration to us. Your insight has guided us through the most difficult of times.

Please know that we appreciate you and truly wish the very best for you. You are a great friend to us! Thank you.

Thank you Kim... We are so much more than RSD'ers..RSD is only a small portion of our lives..it's what is in your heart that really matters!!

Have a painfree day my friend..

Kathy

[Wilbyfree]

Originally Posted by keep smilin

Good morning Jeanie~~

I know I sound nutty but we have RSD but thats not all we are..I refuse to let that bugger consume me in fear I will miss other stuff in my life that will give me pleasure..I could miss the fun stuff while focusing my efforts on totally RSD..and the good stuff makes my ticker feel good esp. if I can help someone else feel better and I love that feeling!!

You are very wise in weaning due to having a better response for you pump to take over from your surgery, btw I am really sorry you have to have that done!! I heard the other day from Dr.S's office that because I am not a medicine person..I will repond better to the Ketamine...so I hope the same holds for you with you fusion...I had a pump after my second knee surgery, manual manipulation surgery..it was not too bad having the pump in..it helped with the pain .....

Well myself and Dr. S..I am now addressing coverage, possibilites with my ins. I am having a third appeal plus I have contacted my NYS ins. dept. group to investigate it on my behalf...otherwise..Dr. S has sent me info for my appeal and Dr. S's office have already scheduled clearences to be done in Sept. so they are moving ahead while I babysit the ins...This is a fustrating thing for everyone here...hopefully I can get some good news then share with everyone here to go about it and WIN!!!!

I love hearing from you...enjoy your day, my friend and I pray for an easier day for you!!

Kathy

Nutty.....I am with you 100% on the attitude. I think that is why for me I use the denial technique. I can't imagine living the rest of my life with this pain, so I literally don't imagine it. I do get really scared when I hear people have had this for decades and how it has spread. You just know when your body is reeking havoc, and yet I just tell myself to live in the moment and challenge each day as it comes. I can't compare myself to what I was years ago, even without this disease, life is supposed to change. Life altering...absolutely but consuming one's life is a choice. It was difficult for me to come to this forum, my Dr. told me I needed to join a support group. I cannot talk about the pain I have. I do everything in my power to hide it, let's face it most people really don't want to hear about pain issues so I save my energy for things that relinquish the heart and soul. I like you, have great compassion for all who suffer from this, I know your pain, I live it. The doctors that harrass people and insurance companies who deny people is totally uphauling to me. I too have been through that, but in my heart, I also know what I know, and I know God knows and I just don't worry much beyond that. I pray everynight for everyone on this forum, for those who are lost that they will find a way and for those who have found a way to share and encourage each other through the difficult times. You are all a great support for each other and for me. By praying I feel as though I am able to contribute something. God Bless and wishing you a pain free day.

Jeanie

[keep smilin]

Originally Posted by Wilbyfree

Nutty.....I am with you 100% on the attitude. I think that is why for me I use the denial technique. I can't imagine living the rest of my life with this pain, so I literally don't imagine it. I do get really scared when I hear people have had this for decades and how it has spread. You just know when your body is reeking havoc, and yet I just tell myself to live in the moment and challenge each day as it comes. I can't compare myself to what I was years ago, even without this disease, life is supposed to change. Life altering...absolutely but consuming one's life is a choice. It was difficult for me to come to this forum, my Dr. told me I needed to join a support group. I cannot talk about the pain I have. I do everything in my power to hide it, let's face it most people really don't want to hear about pain issues so I save my energy for things that relinquish the heart and soul. I like you, have great compassion for all who suffer from this, I know your pain, I live it. The doctors that harrass people and insurance companies who deny people is totally uphauling to me. I too have been through that, but in my heart, I also know what I know, and I know God knows and I just don't worry much beyond that. I pray everynight for everyone on this forum, for those who are lost that they will find a way and for those who have found a way to share and encourage each other through the difficult times. You are all a great support for each other and for me. By praying I feel as though I am able to contribute something. God Bless and wishing you a pain free day.

Jeanie

Jeanie~

Your words are perfect and eliquent... describing how you felt and how you cope with the everyday..all day..rest of our life pain... is not the easy way to cope but I think the best way to cope..see when all of us have this insurmountable RSD pain constantly..everyday..for years, it breaks us down..we are literially mush on the ground..and how can it not do that to us..but the strong willed, (me, I am a bit stubborn...), we must refuse to wallow in it as that is counterproductive.. we only get this one shot at life...live in the moment, manage in the moment and you are right...don't look ahead as none of know what tomorrow will bring..!! You are right..allow ourselves to feel sad the hard part, but it is a must that we get back up fighting and find the happy parts within ourselves.. our hearts and our future.. it's there we just have to spread the ugly weeds apart to find it..In the long run we will all benefit having found that warmth within us and then we can share it with those who are having trouble getting thru those ugly weeds, warm part in their lives..Once we share the love it will come back to us 10 fold and RSD will not be able to impact that part of us.. thats the wonderful sweet part and It is a win win situation..

Much love to all...and thank you Jeanie for your awesome post!!!

Kathy

[wswells]

o

Originally Posted by keep smilin

heartfelt message...For a very long time now..since my RSD began..I have really enjoyed this message ... I would love to give it to each of you as my gift to you.. here it is::::


Life is not about waiting for the storm to pass....Life is about learning to dance in the rain...


Thank you all for your friendships... support and the will to move forward!!


With love, Kathy

Hi Kathy, It's nice to wake up to your message this was a good day for me to be possitive, Not having a good day. I am new to the internet and please please bear with me. I am not new to RSD I was diagnosed in 1986 thought I had seen everything,I even have seen Dr. Schwartzman 2 times he helped me with new blocks they I do. I thought I was cured. The Dr. told me don't get too excited, this RSD crap can come back, 1 month later it was back. Now it's in my intestines and the pain ia awful. It has invaded my insides I had a endoscopy and colono scopy which showed erosion in my throat and in my colon.A few months ago I noticed that the skin on myabdomin was mottled like almost everyone with RSD must have had at some point.I guess this RSD is the gift that just keeps taking and not giving much back.I guess that we just keep on fighting. Your friend Wendy

[keep smilin]

Originally Posted by wswells

o

Hi Kathy, It's nice to wake up to your message this was a good day for me to be possitive, Not having a good day. I am new to the internet and please please bear with me. I am not new to RSD I was diagnosed in 1986 thought I had seen everything,I even have seen Dr. Schwartzman 2 times he helped me with new blocks they I do. I thought I was cured. The Dr. told me don't get too excited, this RSD crap can come back, 1 month later it was back. Now it's in my intestines and the pain ia awful. It has invaded my insides I had a endoscopy and colono scopy which showed erosion in my throat and in my colon.A few months ago I noticed that the skin on myabdomin was mottled like almost everyone with RSD must have had at some point.I guess this RSD is the gift that just keeps taking and not giving much back.I guess that we just keep on fighting. Your friend Wendy

Wendy honey..You have no other choice but to keep fighting..sadly it is part of us now..we digest the issues of what it is doing to us and allow our selves the time to let it sink in..feel sad but then..move forward with a sludge hammer..never letting it take total control of you ..

I am so so so sorry for your RSD and the path it is taking on you... You have had it for a very long time.. it is not easy..take the time to smell the fresh air and see the sunshine outside..it really is the small free stuff that matters... We have eachother here on this forum...wonderful caring group of people who always understand... Nice to hear from you, my friend!!

Hugz, Kathy