Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

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Old 02-08-2007, 10:06 PM #1
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BroadwayBaby BroadwayBaby is offline
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BroadwayBaby BroadwayBaby is offline
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Join Date: Feb 2007
Posts: 44
15 yr Member
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I'll add my two cents - I was diagnosed at 14, and it's really hard, especially if, like me (and you, it sounds like), you were really active physically, and now it hurts to do so much of what was once normal.

For the record - I've had nerve blocks and epidurals. Sometimes such things give relief, sometimes they don't. I had 3 different nerve blocks and 2 epidurals. In my case, the blocks gave me relief for about 2 days each. The epidurals didn't even last that long. That doesn't mean such things shouldn't be done, because any relief is a good thing, and because they don't have a lot of side effects (actually, I don't know of any - does anyone else?).

I would say - listen to your doctor, but do some research yourself. Many doctors just don't know a lot about RSDS/CRPS, so make sure you learn as much as you can, and if your doctor says something that doesn't make sense to you, ASK QUESTIONS! No matter how old you are, it is YOUR BODY, and you have the right to know EXACTLY what they're doing, EXACTLY why they're doing it, and EXACTLY what it is supposed to do. One of the things that anyone on this board will tell you is that you (and your parents) have to be your own advocate.

Best to you, and know that you've found friends here.
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