Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

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Old 04-01-2010, 08:00 PM #1
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Default Hi,

If you have to have surgery ask the Anesteologist to do a block before the surgery.

Ada
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Old 04-01-2010, 10:51 PM #2
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Ditto on the advice above,,I had a THR and rsd went into overdrive,,,its a deep joint surgery,,,continous block if its a have to case,,but other than that I concur with the above,,I also have both shoulders that are bad,,one that has a torn rotorcup,,,I dont lift my arm over head or do front lateral raises,,,good luck,,,,pm if you want to,,I was informed of a insurance option 2day
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Old 04-03-2010, 04:21 AM #3
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I'm just curious what the issue is that you need bilateral total shoulder replacements done. Is that condition really worse than the bilateral shoulder RSD that it would probably cause ?

Where is your RSD now ? Will you be able to do all of the shoulder exercises needed after the replacements ?

I have a friend who's ortho wants her to have a shoulder replacement and has mentioned "there's a touch of RSD in there too" How the heck can it only be 'a touch' of RSD ? I'm so afraid for her that any surgery will just make things worse.
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Old 04-03-2010, 11:32 AM #4
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I won my ssdi but the longterm from my employer I lost. the Ortho did xrays on both the shoulders and i have no joint space left so it is bone on bone I have RSD in both my arms from my shoulders down to my hands and it is spreading to my legs, i was getting injections in my shoulder every 3 months but it is not working any more.
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Old 04-03-2010, 02:53 PM #5
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Originally Posted by RSD31 View Post
I won my ssdi but the longterm from my employer I lost. the Ortho did xrays on both the shoulders and i have no joint space left so it is bone on bone I have RSD in both my arms from my shoulders down to my hands and it is spreading to my legs, i was getting injections in my shoulder every 3 months but it is not working any more.
It seems to be a common practice in this great nation of ours. My wife has had RSD for 8 years. She worked for the largest defense contractor in the world for 15 years in the benefits department. She was denied longterm disabilily (2 years) after 4 years of suffering with no treatment from ignorant docs and also has been denied SSDI sinse 2006 from stupid government employees, or are they? Of course not, it seems to be greed more than anything, which is fine by me but not when an employee pays into a system then rips them off when a payout is do!
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Old 04-03-2010, 07:19 PM #6
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I won both SSD & my LTD insurance right off the bat. I didn't have any problems with getting either one at all.

I don't see how LTD can deny you when you won your SSDI. Makes no sense to me at all. I do have fill out paperwork every 2 yrs though to keep getting it. When I turn 62 I will no longer get it though. They figure when you hit retirement age they don't need to pay you anything.

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Old 04-04-2010, 09:17 PM #7
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I won both SSD & my LTD insurance right off the bat. I didn't have any problems with getting either one at all.

I don't see how LTD can deny you when you won your SSDI. Makes no sense to me at all. I do have fill out paperwork every 2 yrs though to keep getting it. When I turn 62 I will no longer get it though. They figure when you hit retirement age they don't need to pay you anything.

Debby
Hi Debby, I had no idea that you could get LTD and SSDI both. Usually, in all of the cases I have heard they have to pay back the LTD. I was under the impression that LTD was a carryover until you recieved your SSDI. But good for you!

Jeanie
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Old 04-04-2010, 01:08 AM #8
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Quote:
Originally Posted by RSD31 View Post
I won my ssdi but the longterm from my employer I lost. the Ortho did xrays on both the shoulders and i have no joint space left so it is bone on bone I have RSD in both my arms from my shoulders down to my hands and it is spreading to my legs, i was getting injections in my shoulder every 3 months but it is not working any more.
It always comes down to the wording of the policy, not the general description of what we think we got. On an employer generated policy, we are likely sold down the river. Comes down to an ERISA thing sometimes, and many times and on whether your policy was an own occupation vs. an any occupation plan. Very sorry, that really sucks...
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Old 04-04-2010, 01:14 AM #9
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Quote:
Originally Posted by RSD31 View Post
I won my ssdi but the longterm from my employer I lost. the Ortho did xrays on both the shoulders and i have no joint space left so it is bone on bone I have RSD in both my arms from my shoulders down to my hands and it is spreading to my legs, i was getting injections in my shoulder every 3 months but it is not working any more.
It always comes down to the wording of the policy, not the general description of what we think we got. On an employer generated policy, we are likely sold down the river. Comes down to an ERISA thing sometimes, and many times and on whether your policy was an own occupation vs. an any occupation plan. Very sorry, that really sucks...

ON second thought, if your shoulder injections were for pain that was originally authorized for treatment, then you may be able to couple the shoulder arthritis into previously authorized issues. Your injections, assuming they were cortisone based, would eventually eat up the cartilage and cause your issues and therefore be related to your original claim (I think). If you have an attorney, discuss this with him/her.
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