Hey

Internal organs --> not all drs agree it occurs - however they do agree that I have issues with them that I didn't have before RSD. (Swallowing/ oespohagus/ stomach/ bowel issues - involving spasms and inflammation and lots of aspirating), heart / lungs - very high pulse, low blood saturation, variable bp from vlow to vhigh, kidneys - blood tests show up some sort of thing - they can't work out what it is.

InHisHands - I wish they could work it out too!!!! It doesn't make sense - but I suppose alot of stuff doesn't make sense!

Glad I am an insipiration LOL - though probaly not a brill one

Like everyone - there are days when this thing is very hard to fight - but I have found that trying to stay cheerful and as "normal" as possible (socialising with people my own age and trying to do the same things they do -erm.... go out and get drunk mainly ) really helps as it helps to distract me.

Wow - if im an inspiration then I will have to start behaving!

Keep on fighting - we'll get there...

Love

Rosie xxxxxxxx

Hi,

Within about 6-10 months of my right/arm hand getting injured, my left arm & wrist started to havae the same "pains" (it's been 5 1/2 yrs, memory is bad about exactly what). I thought I was just "getting nutty" & refused to think about it. I didn't know (& had never heard about the monster, RSD, at that time).

But about 1 year later both feet started burning, which was a different feeling than how my hands/arms started. The burning spread up both legs, which also changed to the constant pins & needles, along with the burning. I DO NOT KNOW WHAT THIS IS. I kind of think, that since it now feels exactly like my arms feel, that it may have started out as, "idopathic neuropathy" in my feet, which then TURNED INTO RSD.

So, I don't know if I've helped you or not!

Take care,

Denise