Thanks for the reply. Humm... this morning my feet turned so purple they were nearly black. Sounds like what you are saying. Ugh... and my legs are getting ICE cold and SO sensitive.

I'll say RSD can be VERY dramatic in some people. Saturday I was running, and Sunday I could hardly move, the pain/ RSD was in BOTH feet and legs. How strange is RSD???!!!

It IS scary- HOW can it keep spreading??? WHY does it spread? Why in some people and not others? How does RSD really start? Why can't it be an easy road to recovery, remission or any improvement???

Just rambling... I have so many questions that I'd love for someone to be ABLE to answer!! Nobody knows the answers to the questions...

Keep fighting!!!

Hey

Internal organs --> not all drs agree it occurs - however they do agree that I have issues with them that I didn't have before RSD. (Swallowing/ oespohagus/ stomach/ bowel issues - involving spasms and inflammation and lots of aspirating), heart / lungs - very high pulse, low blood saturation, variable bp from vlow to vhigh, kidneys - blood tests show up some sort of thing - they can't work out what it is.

InHisHands - I wish they could work it out too!!!! It doesn't make sense - but I suppose alot of stuff doesn't make sense!

Glad I am an insipiration LOL - though probaly not a brill one

Like everyone - there are days when this thing is very hard to fight - but I have found that trying to stay cheerful and as "normal" as possible (socialising with people my own age and trying to do the same things they do -erm.... go out and get drunk mainly ) really helps as it helps to distract me.

Wow - if im an inspiration then I will have to start behaving!

Keep on fighting - we'll get there...

Love

Rosie xxxxxxxx