Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

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Old 01-25-2007, 08:00 PM #1
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Quote:
Originally Posted by misreable View Post
Thanks For Responding And Answering Some Much Needed Question's
Yes I Have Try Ed Neurontin Many Of The Med's In That Field Nothing
I Mean Nothing Is Helping, Now I'm On My Second Pain Clinic They
Have Gave Me 2 Nerve Blocks In The Back And One In The Neck Do I
Let Them Do This Again When Nothing Is Helping Is This Dangerous ?
Thanks For The Advice Susan
My husband had 26 sympathetic nerve blocks. That was back in 1995 with no adverse effects as of date. I feel - It stopped the RSD from spreading to his other limbs.

** Just a note - I know I said hubby had it in his arm now which is true but that was due to the nerve transposition - Not spreading of RSD.
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Old 01-25-2007, 08:52 PM #2
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Heya

I stopped with the blocks cos they were doing more harm than good.

Have you been evaluated for a pump?

Rxxxx
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Old 01-25-2007, 09:38 PM #3
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Hi Susan

Welcome to the forum

In one of the very valuable links posted by Roz/Buckwheat, a general "overview" of RSD:
http://appneurology.com/showArticle....leId=196513289
it says:
"Although opioids are the gold standard for treating acute pain, their use is highly controversial in CRPS.6 "We know that opioids cause hyperalgesia," said Harden. "If you have a drug that causes hyperalgesia and a disease that is characterized by hyperalgesia, how logical is it to use that drug in that disease?" Oaklander agreed that it was theoretically possible for opioids to worsen CRPS, but she said that this should not prevent physicians from prescribing opioids for certain patients who have CRPS. She did, however, caution that the lowest effective dose should be used."

So this applies to vicoden, oxycodone and oxycontin (anything with morphine in it)....may be worth trying to find a substitute for the vicoden to see if it lessens the sensitivity. May help a bit. (Didn't do a thing for my RSD anyway personally!)

BTW I went through the desensitization, it was a great help, though very hard at first...

Oh, a small request - would it be possible to type in maybe just small type, lose the caps - many of us have blurry eyes, that "mixed type" goes jumping all over the page for me - meds + old age = blurry vision !
all the best!

Last edited by artist; 01-26-2007 at 08:17 PM.
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Old 01-26-2007, 08:01 AM #4
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Thanks Artist - how are you doing? I know I should post on another bit ...

The blurry eyes thing is not good..- Susan's caps do make reading quite difficult.

Hope you are doing ok!!

Rxxxxxx
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Old 01-26-2007, 08:02 AM #5
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oops = forgot to say -->

desense is totally worth it (though you don't feel like it at the time) and it does REALLY help - I never thought it would - but seriously - go for it....

Rxxx
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Old 01-26-2007, 02:46 PM #6
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Hi Artist
" Know more caps " my husband is allways on me about this so sorry
sure don't want to cause any one any more problems let me know if this
is to small--why haven't these Dr's said any thing about the Vicodin all the
$$$$ I have spent I bet you any thing your " right" how do I get off what I'm
on ? also on Oxazepam (serax) two a day 15mg. each for panic attacks
tryed valium once had major panic attacks just tryed once maybe I quit
the oxazepam to fast what to do now I guess I won't try the morphin--I think
the last shot they gave me in my neck did help with the burning in left arm
and thumb feet are burning a little now hard for me to hold with my left arm any pressure makes my arm really burn--the thumb and arm pain!!!!!!!!!!
this all started after shingel's also I was a manicurist by trade I think I have
just over used my hands really miss seeing my client's--don't get out much
not worth puting the clothes on ? the cold live in Michigan not by choice--
wonder what I could take for the pain?& panic attacks I also take zoloft at
night--pills just sick of it. I just don't believe these Dr.'s they have to know
this just agervates every thing.The best thing that has happened for me in the last 4 yrs.Is the advice I have gotten in the last 2 days.
can't find the spell check on this sight? T
Thanks Susan


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Old 01-26-2007, 03:01 PM #7
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lost my connection and my post.

hi susan

sorry to say we don't have a spell check feature here. nobody really seems to mind the typos and the errors. thank goodness..since i'm a typo queen.

the default setting on the font size is a 2. here are some examples of the larger sizes. you change it by the little arrow next to the number. no real change until about 4 or 5.

3
4
5
6
7

putting breaks in the paragragh helps too. makes it easier on the eyes.

i'm so sorry you are having such a rough time. you have an awesome support group here.
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