Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

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Old 04-05-2010, 03:43 PM #1
SandyS SandyS is offline
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Hi all,

My daughter was just prescribed Nucynta...Has anyone had any results with this med??

Also, her PM put her on 4 different anti oxidents and vitamins. She said she has had some really great results with other CRPS patients finding pain relief.


If you would like me to post the vitamins and the web page, let me know and I will be happy to!

Sandy
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Old 04-05-2010, 08:03 PM #2
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I would like to know the vitamins and antioxidants she suggested!

TY
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Old 04-06-2010, 07:57 AM #3
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I have not heard of that med but would be interested in the vitamins. I saw a holistic doc who worked with them a little. Also my current pain doc had me take vitamin c. Thanks and hope your daughter is feeling better
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Old 04-06-2010, 07:02 PM #4
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So here is the list that she gave me...the web site is through the doctors office and you have to be a patient of the doctor to order through this company...

the list is as follows:

Lipoic Acid
Coenzyme Q10
Multivitamin with B3, B12, B6 Comples
Turmenic
Omega 3 and 6

She told me to take the dose that is on the bottle. I haven't ordered them yet, as they are a little expensive for all, so I need to wait for payday!

I will let you know how she does after a while.

Sandy

Also, make sure that you check with your doctor before taking any of these, sometimes they may interfere with the meds that you are taking. So Please contact your doctor before mixing these supplements with your other meds. Love you all



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Originally Posted by daniella View Post
I have not heard of that med but would be interested in the vitamins. I saw a holistic doc who worked with them a little. Also my current pain doc had me take vitamin c. Thanks and hope your daughter is feeling better
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Old 04-07-2010, 04:32 PM #5
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Hi Sandy

Walmart and Target can also be great for vitamins - watch for their 2 for 1 deals. I was surprised the last time I re-stocked my vitamin supply on how much I spent!! Ouch...

I have been taking 2000-3000 mg Fish Oil, B-12, Selenium, 1200 mg Calcium, 1000 mg Vitamin C and a Women's multi-vitamin for about a year and a half. I'm really hoping that my bones are OK, I haven't had a bone scan since all this started. I take my vitamins when I've eaten because I've heard that they are better absorbed that way.

The best of luck to you and Lindsay with the new regimen!! Think positive!

XOXOX Sandy



Quote:
Originally Posted by SandyS View Post
So here is the list that she gave me...the web site is through the doctors office and you have to be a patient of the doctor to order through this company...

the list is as follows:

Lipoic Acid
Coenzyme Q10
Multivitamin with B3, B12, B6 Comples
Turmenic
Omega 3 and 6

She told me to take the dose that is on the bottle. I haven't ordered them yet, as they are a little expensive for all, so I need to wait for payday!

I will let you know how she does after a while.

Sandy

Also, make sure that you check with your doctor before taking any of these, sometimes they may interfere with the meds that you are taking. So Please contact your doctor before mixing these supplements with your other meds. Love you all
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Old 04-07-2010, 05:55 PM #6
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Hey Sandy,

Her doctor told me to get them off this site, because they are completely natural, no additives...and she can keep track of what she is taking through their service. The prices aren't too bad, I check them out last night. So I am going to go with the initial purchase and then take the container with me to the store to see how they size up with a lower cost supplement.

Thanks all for all of the great replies, I really appreciate all of the help.

love Sandy

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Hi Sandy

Walmart and Target can also be great for vitamins - watch for their 2 for 1 deals. I was surprised the last time I re-stocked my vitamin supply on how much I spent!! Ouch...

I have been taking 2000-3000 mg Fish Oil, B-12, Selenium, 1200 mg Calcium, 1000 mg Vitamin C and a Women's multi-vitamin for about a year and a half. I'm really hoping that my bones are OK, I haven't had a bone scan since all this started. I take my vitamins when I've eaten because I've heard that they are better absorbed that way.

The best of luck to you and Lindsay with the new regimen!! Think positive!

XOXOX Sandy
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Old 04-06-2010, 07:03 PM #7
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So here is the list that she gave me...the web site is through the doctors office and you have to be a patient of the doctor to order through this company...

the list is as follows:

Lipoic Acid
Coenzyme Q10
Multivitamin with B3, B12, B6 Complex
Turmenic
Omega 3 and 6

She told me to take the dose that is on the bottle. I haven't ordered them yet, as they are a little expensive for all, so I need to wait for payday!

I will let you know how she does after a while.

Sandy

Also, make sure that you check with your doctor before taking any of these, sometimes they may interfere with the meds that you are taking. So Please contact your doctor before mixing these supplements with your other meds. Love you all



Quote:
Originally Posted by daniella View Post
I have not heard of that med but would be interested in the vitamins. I saw a holistic doc who worked with them a little. Also my current pain doc had me take vitamin c. Thanks and hope your daughter is feeling better
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Old 04-06-2010, 10:28 PM #8
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Do you have a Costco or BJs- They are MUCH cheaper there!!
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Old 04-07-2010, 04:30 PM #9
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I take all those vitamins and antioxidants plus a few more. They are widely available at health food stores so you don't have to go to expensive proprietary products from a website. It is important is that you get good quality products and that you follow your doctors recommended dosages. They are very good for the nerves and inflammation.

All my doctors know what I take and we always take this into consideration when we change my meds.

I haven't heard of the Nucynta, do you know what that is supposed to do?

Good luck with them.

MsL
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Old 04-14-2010, 09:36 AM #10
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Hi Sandy.

I have been taking Nucyenta for four months now. My PM prescribed it for pain. It a class 2 narcotic and is very similar to Morphine. It comes in several dosages. Mine is 50mg three ties a day. I live in MD and have had a horrible time finding a pharmacy that carries it. My hometown pharm. took three months to finally get it for me. He said it is very new and outragesly (sp?) expensive, so not too many prescribe it. I had to pay for it with my primary insurance (not w/c) and my copay was $40.00 for 90 pills! Well worth it for me, as I cannot tolerate narcotics, but I am not constantly vomiting with this. Hope it works for her.
Kim
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