Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


advertisement
Reply
 
Thread Tools Display Modes
Old 04-05-2010, 03:43 PM #1
SandyS SandyS is offline
Member
 
Join Date: Jan 2009
Location: Tampa, Fl.
Posts: 409
15 yr Member
SandyS SandyS is offline
Member
 
Join Date: Jan 2009
Location: Tampa, Fl.
Posts: 409
15 yr Member
Default Nucynta

Hi all,

My daughter was just prescribed Nucynta...Has anyone had any results with this med??

Also, her PM put her on 4 different anti oxidents and vitamins. She said she has had some really great results with other CRPS patients finding pain relief.


If you would like me to post the vitamins and the web page, let me know and I will be happy to!

Sandy
SandyS is offline   Reply With QuoteReply With Quote

advertisement
Old 04-05-2010, 08:03 PM #2
debbiehub debbiehub is offline
Member
 
Join Date: Oct 2006
Location: Long Island NY
Posts: 765
15 yr Member
debbiehub debbiehub is offline
Member
 
Join Date: Oct 2006
Location: Long Island NY
Posts: 765
15 yr Member
Default yes

I would like to know the vitamins and antioxidants she suggested!

TY
debbiehub is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
SandyS (04-07-2010)
Old 04-06-2010, 07:57 AM #3
daniella daniella is offline
Magnate
 
Join Date: May 2007
Posts: 2,998
15 yr Member
daniella daniella is offline
Magnate
 
Join Date: May 2007
Posts: 2,998
15 yr Member
Default

I have not heard of that med but would be interested in the vitamins. I saw a holistic doc who worked with them a little. Also my current pain doc had me take vitamin c. Thanks and hope your daughter is feeling better
daniella is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
SandyS (04-07-2010)
Old 04-06-2010, 07:02 PM #4
SandyS SandyS is offline
Member
 
Join Date: Jan 2009
Location: Tampa, Fl.
Posts: 409
15 yr Member
SandyS SandyS is offline
Member
 
Join Date: Jan 2009
Location: Tampa, Fl.
Posts: 409
15 yr Member
Default

So here is the list that she gave me...the web site is through the doctors office and you have to be a patient of the doctor to order through this company...

the list is as follows:

Lipoic Acid
Coenzyme Q10
Multivitamin with B3, B12, B6 Comples
Turmenic
Omega 3 and 6

She told me to take the dose that is on the bottle. I haven't ordered them yet, as they are a little expensive for all, so I need to wait for payday!

I will let you know how she does after a while.

Sandy

Also, make sure that you check with your doctor before taking any of these, sometimes they may interfere with the meds that you are taking. So Please contact your doctor before mixing these supplements with your other meds. Love you all



Quote:
Originally Posted by daniella View Post
I have not heard of that med but would be interested in the vitamins. I saw a holistic doc who worked with them a little. Also my current pain doc had me take vitamin c. Thanks and hope your daughter is feeling better
SandyS is offline   Reply With QuoteReply With Quote
Old 04-06-2010, 07:03 PM #5
SandyS SandyS is offline
Member
 
Join Date: Jan 2009
Location: Tampa, Fl.
Posts: 409
15 yr Member
SandyS SandyS is offline
Member
 
Join Date: Jan 2009
Location: Tampa, Fl.
Posts: 409
15 yr Member
Default

So here is the list that she gave me...the web site is through the doctors office and you have to be a patient of the doctor to order through this company...

the list is as follows:

Lipoic Acid
Coenzyme Q10
Multivitamin with B3, B12, B6 Complex
Turmenic
Omega 3 and 6

She told me to take the dose that is on the bottle. I haven't ordered them yet, as they are a little expensive for all, so I need to wait for payday!

I will let you know how she does after a while.

Sandy

Also, make sure that you check with your doctor before taking any of these, sometimes they may interfere with the meds that you are taking. So Please contact your doctor before mixing these supplements with your other meds. Love you all



Quote:
Originally Posted by daniella View Post
I have not heard of that med but would be interested in the vitamins. I saw a holistic doc who worked with them a little. Also my current pain doc had me take vitamin c. Thanks and hope your daughter is feeling better
SandyS is offline   Reply With QuoteReply With Quote
Old 04-06-2010, 10:28 PM #6
debbiehub debbiehub is offline
Member
 
Join Date: Oct 2006
Location: Long Island NY
Posts: 765
15 yr Member
debbiehub debbiehub is offline
Member
 
Join Date: Oct 2006
Location: Long Island NY
Posts: 765
15 yr Member
Default vitamins

Do you have a Costco or BJs- They are MUCH cheaper there!!
debbiehub is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
SandyS (04-07-2010)
Old 04-07-2010, 04:30 PM #7
Mslday's Avatar
Mslday Mslday is offline
Member
 
Join Date: Aug 2008
Posts: 409
15 yr Member
Mslday Mslday is offline
Member
Mslday's Avatar
 
Join Date: Aug 2008
Posts: 409
15 yr Member
Default

I take all those vitamins and antioxidants plus a few more. They are widely available at health food stores so you don't have to go to expensive proprietary products from a website. It is important is that you get good quality products and that you follow your doctors recommended dosages. They are very good for the nerves and inflammation.

All my doctors know what I take and we always take this into consideration when we change my meds.

I haven't heard of the Nucynta, do you know what that is supposed to do?

Good luck with them.

MsL
__________________
"When humans learn to be gratefully present every moment, they become angels. It’s not the wings that make the angel, but the message of courageous presence and creative acceptance, no matter what the moment brings: “Fear not!”" Gratefulness.org
Mslday is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
SandyS (04-07-2010)
Old 04-07-2010, 04:32 PM #8
SandyRI SandyRI is offline
Senior Member
 
Join Date: Dec 2008
Location: Rhode Island
Posts: 1,056
15 yr Member
SandyRI SandyRI is offline
Senior Member
 
Join Date: Dec 2008
Location: Rhode Island
Posts: 1,056
15 yr Member
Default

Hi Sandy

Walmart and Target can also be great for vitamins - watch for their 2 for 1 deals. I was surprised the last time I re-stocked my vitamin supply on how much I spent!! Ouch...

I have been taking 2000-3000 mg Fish Oil, B-12, Selenium, 1200 mg Calcium, 1000 mg Vitamin C and a Women's multi-vitamin for about a year and a half. I'm really hoping that my bones are OK, I haven't had a bone scan since all this started. I take my vitamins when I've eaten because I've heard that they are better absorbed that way.

The best of luck to you and Lindsay with the new regimen!! Think positive!

XOXOX Sandy



Quote:
Originally Posted by SandyS View Post
So here is the list that she gave me...the web site is through the doctors office and you have to be a patient of the doctor to order through this company...

the list is as follows:

Lipoic Acid
Coenzyme Q10
Multivitamin with B3, B12, B6 Comples
Turmenic
Omega 3 and 6

She told me to take the dose that is on the bottle. I haven't ordered them yet, as they are a little expensive for all, so I need to wait for payday!

I will let you know how she does after a while.

Sandy

Also, make sure that you check with your doctor before taking any of these, sometimes they may interfere with the meds that you are taking. So Please contact your doctor before mixing these supplements with your other meds. Love you all
SandyRI is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
SandyS (04-07-2010)
Old 04-07-2010, 04:41 PM #9
Mslday's Avatar
Mslday Mslday is offline
Member
 
Join Date: Aug 2008
Posts: 409
15 yr Member
Mslday Mslday is offline
Member
Mslday's Avatar
 
Join Date: Aug 2008
Posts: 409
15 yr Member
Default Tapentadol marketed as Nucynta

Hi Sandy,

I just looked up this drug and realized that it has been on my watch list under the name of Tapentadol.

Apparently it is a very clean drug as it is cleared by the kidneys. It is a dual action, centrally acting analgesic. The IR formulation had been approved by the FDA in 2008 for acute pain. There has been an ongoing Phase 3 clinical trial for the ER formulation for use with various pains so I'm pleased to see it's been passed and now on the market.

I hope your daughter finds good results with it.

MsL
__________________
"When humans learn to be gratefully present every moment, they become angels. It’s not the wings that make the angel, but the message of courageous presence and creative acceptance, no matter what the moment brings: “Fear not!”" Gratefulness.org
Mslday is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
SandyS (04-07-2010)
Old 04-07-2010, 05:52 PM #10
SandyS SandyS is offline
Member
 
Join Date: Jan 2009
Location: Tampa, Fl.
Posts: 409
15 yr Member
SandyS SandyS is offline
Member
 
Join Date: Jan 2009
Location: Tampa, Fl.
Posts: 409
15 yr Member
Default

Msl,

Thank you for the information, it seems to help her for a few hours, but then her pain is returning. I think it will take a little while for it to get into her system to show if it is really going to help her.

thanks again,

Sandy

Quote:
Originally Posted by Mslday View Post
Hi Sandy,

I just looked up this drug and realized that it has been on my watch list under the name of Tapentadol.

Apparently it is a very clean drug as it is cleared by the kidneys. It is a dual action, centrally acting analgesic. The IR formulation had been approved by the FDA in 2008 for acute pain. There has been an ongoing Phase 3 clinical trial for the ER formulation for use with various pains so I'm pleased to see it's been passed and now on the market.

I hope your daughter finds good results with it.

MsL
SandyS is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
StevenD (08-17-2014)
Reply


Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off


Similar Threads
Thread Thread Starter Forum Replies Last Post
Nucynta for pain spinalosis Medications & Treatments 0 09-09-2009 07:56 AM
Nucynta purplewings Reflex Sympathetic Dystrophy (RSD and CRPS) 4 06-25-2009 04:21 AM


All times are GMT -5. The time now is 09:58 PM.

Powered by vBulletin • Copyright ©2000 - 2024, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise v2.7.1 (Lite) - vBulletin Mods & Addons Copyright © 2024 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.


Always consult your doctor before trying anything you read here.