Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

 
 
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Old 04-07-2010, 12:06 PM #5
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Join Date: Aug 2009
Posts: 851
15 yr Member
keep smilin keep smilin is offline
Member
 
Join Date: Aug 2009
Posts: 851
15 yr Member
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Quote:
Originally Posted by bobber View Post
Hi Lisa
Im saden to hear about your condition,,,,I agree with pete,,be carefull with the SCS,,it can cause spread,,,but it can help,,but the % of the people that I have talked with,,,it either causesed a spread immediately or over time,,but Ive heard a couple of cases that it worked,,Its worth a shot,,but I'd opt for the painpump myself,,,try to find out if your in SMP or SIP . The SCS trial will probually let you know fast,,But about the full body,,my opinion, in my case,,,I had it kick in after 7-8 months onset of contracting rsd,,,remember they changed the name to crps for mumerous reasons,,one is the [ C ] stands for complex,,,meaning no two people symptoms or treatment is the same nor works the same,,,we do have numerous cookie cuttter things and meds that seem to help tho..I know of many people who have rsd for many years and not go into internal,,And then there are several on this formum includeing me that went into full body in less than a year,,,I believe that mine is due to an nerve entrapement that needs to be addressed and stress exasberaates it too,,rsdI ussualy spreads at a slower pace,and stage II[causalgia] ussualy is a more severe spread and at a faster pace because theres nerve damage or entrapment involved,,,,I hope and pray that you are ok and your condition does not spread and that you are blessed with a remission,,,,early treatment is crucial and keep moveing,,,I pray that God will reverse your condition,,,,,bobber
Dear Lisa....

You sound so sweet!! So nice to have you join us.. I am however very sorry in that you suffer from RSD as well...Lisa, I am a SCS person..I had mine implanted in 9/08...Sadly I did not benefit from it..it caused my RSD to get "mad" when I used it and it has spread as a result also..Plz. ask lots of questions, read on this forum and do your homework before having it..some people benefit others don't..we are all different..As far as the internal portion of your question..vs. whole body... whole body embraces the thought of external involvement..each limb and more as well as internal meaning..exactly that in it is inside of us as well..Usually the way to determine inside you will feel the same burning pain internally as you do on the outside of your body...and our organs could stop functioning properly.. Hard pill to swallow I know..and I am sorry to talk about it like..pass me the milk plz..but I want you to know that we are all close and family here..We take care of each other..when it is a good day we cheer for eachother when it's a bad..we shoulder eachothers pain...I am happy you found us..we are lucky to have you..Let me know whatelse I can do for you...

Genlte hugz,

Kathy
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