Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

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Old 01-25-2007, 12:55 AM #1
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Have you been evaluated for chronic fatigue?
fybromyalgia?
mono?
Epstein barre?sp
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Old 01-25-2007, 01:02 AM #2
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Confused

been evaluated for everything... yes on the fibro-entire back from neck on down
have had 5 mini-strokes went for every test for that too...good news all is fine..heart,arteries,lungs.etc..
am waiting to get an appt for sleep clinic..what that will do????? i have given everything possible a try and then some have been done over 3-4x's ahhhhhh
like i said they call me a mystery...bbut somehow i keep on going??? got to go fallinng asleep at the keyboard goodnight--peace to us all
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Old 01-25-2007, 09:44 AM #3
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Jo beat me to the punch. IT sounds like Cronic Fatigue Syndrome.

I have it and I slept for months like that. I just never thought I would get to where I would stay awake. I don't know how Bill stood me all of these years the way I have been without bitching all of the time.

I was told that all you can do is sleep it off. It will finally calm down or go into what I would call a remission.

When I read your med list, I just about fell out of my seat. I can't take any but I guess with what we deal with a person has to be on a lot. It could contribute to what you are going through but I would definately ask your Dr. about CFS which also goes with Fibro but not always, it's a disease in itself.

Ada
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Old 01-25-2007, 10:16 AM #4
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Quote:
Originally Posted by moonstar View Post
been evaluated for everything... yes on the fibro-entire back from neck on down
have had 5 mini-strokes went for every test for that too...good news all is fine..heart,arteries,lungs.etc..
am waiting to get an appt for sleep clinic..what that will do????? i have given everything possible a try and then some have been done over 3-4x's ahhhhhh
like i said they call me a mystery...bbut somehow i keep on going??? got to go fallinng asleep at the keyboard goodnight--peace to us all
Hon - it's not YOU ...it's your meds!
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right Side TOS Decompression Surgery 12/2005
RSD Exacerbated after surgery
Still have TOS on left side
RSD On right side, currently in hand, forearm (underside), shoulder, chest, to hollow of throat, and in left hand creeping up into left wrist
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Old 01-25-2007, 11:02 AM #5
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Oh Lisa,

Did you read the previous posts in Moonstar's threads? Do. I hope you'll see that Moonstar really doesn't need to be scared too much right now;

Just my opinion, but it is usually best to leave the lectures to the doctors (they do it so well..)

Moonstar, don't worry - go and see the sleep clinic as planned, I expect they'll ask about all that stuff...and your liver will still be there tomorrow - we've all got ours still, despite the many meds,

all the best

Last edited by artist; 01-25-2007 at 11:10 AM. Reason: stuff..
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Old 01-25-2007, 11:46 AM #6
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Quote:
Originally Posted by artist View Post
Oh Lisa,

Did you read the previous posts in Moonstar's threads?
No...I didn't....I do admit haven't been here in a while so I don't know what's happening.....but I will edit not to scare on your advice.

Thank you hon! I don't want to do that, most certainly!
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~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~ ~~
right Side TOS Decompression Surgery 12/2005
RSD Exacerbated after surgery
Still have TOS on left side
RSD On right side, currently in hand, forearm (underside), shoulder, chest, to hollow of throat, and in left hand creeping up into left wrist
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