Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

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Old 04-10-2010, 02:46 PM #1
hope4thebest hope4thebest is offline
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Hi Good 'n Plenty
First, I am so grateful that you've answered my post so quickly and with such detail!! Thanks for taking the time, as I know your days are open to you now, to do all the fun things you were deprived of for so long!!

You've been on the boards for a long time, as I went back and traced your posts from a couple of years ago! You have been through many modalities and you were a brave one to try even the riskier ones. But I see that you were able to also maintain a sense of humor..

Your answers give much information, but especially a lot of incentive since you have had success! There are steps we all can take, stating with diet changes, and mindfulness; they are available to all of us and for no cost!

Mindless eating has become like an analgesic to me, as it is one of the pleasures that I can still do, since I can no longer hike, stroll, or walk more that 100 yards, and it seems to numb the pain and my brain.. It's just that all the horrible things I eat are causing added weight gain, inflammation, and toxins to my body.

It does take a leap of self discipline , and of faith, to turn old harmful habits around, and develop new ones, as arduous as it can be.

I have "it" in my feet and lower limbs...Also, I have been off work for the last 4 days, practically unable to move because of severe back pain, which sent me to E.R. on Thursday. I hope the the RSD isn't deciding to set up camp in my spine and right hip.

Creating new habits is a huge challenge and making time to do all the things that can help is something I have to do. As you know, the pain is so draining and exhausting (I also work full time) that it's 'easier' to take the path of least effort..

Your story is amazing, and you are so kind to come back and share it with us.
I hope you find time to post now and then and continue to inspire us! thanks for the vegan web site!!!
Many thanks!
Hope4thebest
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Old 04-11-2010, 10:34 AM #2
SandyRI SandyRI is offline
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SandyRI SandyRI is offline
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Originally Posted by hope4thebest View Post
Hi Good 'n Plenty


Mindless eating has become like an analgesic to me, as it is one of the pleasures that I can still do, since I can no longer hike, stroll, or walk more that 100 yards, and it seems to numb the pain and my brain.. It's just that all the horrible things I eat are causing added weight gain, inflammation, and toxins to my body.

I have "it" in my feet and lower limbs...Also, I have been off work for the last 4 days, practically unable to move because of severe back pain, which sent me to E.R. on Thursday. I hope the the RSD isn't deciding to set up camp in my spine and right hip.

Hope4thebest

Dear H4TB,

I am SO, SO sorry to hear this latest news. I hope that even though you are WC and they have placed an inordinate number of restrictions on your ability to seek medical care, you can still contact someone in your medical group for help at this terrible time. Obviously their plans need to be modified ASAP. Did you see DianaA's posting on Stanford's recruitment for a lidocaine study?

Please know that you are in my thoughts and prayers.

Love and peace, Sandy
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hope4thebest (04-11-2010)
Old 04-11-2010, 12:25 PM #3
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fmichael fmichael is offline
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Quote:
Originally Posted by SandyRI View Post
Dear H4TB,

I am SO, SO sorry to hear this latest news. I hope that even though you are WC and they have placed an inordinate number of restrictions on your ability to seek medical care, you can still contact someone in your medical group for help at this terrible time. Obviously their plans need to be modified ASAP. Did you see DianaA's posting on Stanford's recruitment for a lidocaine study?

Please know that you are in my thoughts and prayers.

Love and peace, Sandy
Quick thought: why bother to assume that back pain has anything to due with RSD or a foot injury at work? Let someone else worry about that. In the meantime, that's what employer provided health insurance should cover: lock, stock and barrel.

Mike
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Old 04-11-2010, 01:25 PM #4
keep smilin keep smilin is offline
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Quote:
Originally Posted by SandyRI View Post
Dear H4TB,

I am SO, SO sorry to hear this latest news. I hope that even though you are WC and they have placed an inordinate number of restrictions on your ability to seek medical care, you can still contact someone in your medical group for help at this terrible time. Obviously their plans need to be modified ASAP. Did you see DianaA's posting on Stanford's recruitment for a lidocaine study?

Please know that you are in my thoughts and prayers.

Love and peace, Sandy
Hello H4TB...

My friend, it hurts my heart to read that you are not feeling so well and I can feel your pain and sadness...I hope that you will have better days ahead..Our rascal, RSD has zero sense of humor..and it was not invented for the weak..H4TB..you are strong..you are a fighter and you have given so much of yourself to all of us here..our family is here for you also...Hang in there and please do not wavier as we will not give up we will only work harder at living with our nasty illness and not to allow the "system" to hamper our positive fight..... I will pray for you in that you will find the strength to smile and not weaken...

Soft hugz...Kathy
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