[edever34]

I just finished sending Larry King and CNN and e-mail expressing my extreme dissapointment at the fact that RSD was not even mentioned on the Heroes segment. Not to diminish Mackenzie Bearup (the teenage girl) but I stated that if she had Cancer,M S , Muscular Dystrophy Etc that if would have been mentioned. I asked them if this omission was done on purpose and to please respond back to me. I am still so angry at this missed opportunity to raise awareness that I could scream.

I am asking everyone on this site to also send e-mails to CNN.
Fondly-Carol

[wswells]

Originally Posted by edever34

I just finished sending Larry King and CNN and e-mail expressing my extreme dissapointment at the fact that RSD was not even mentioned on the Heroes segment. Not to diminish Mackenzie Bearup (the teenage girl) but I stated that if she had Cancer,M S , Muscular Dystrophy Etc that if would have been mentioned. I asked them if this omission was done on purpose and to please respond back to me. I am still so angry at this missed opportunity to raise awareness that I could scream.

I am asking everyone on this site to also send e-mails to CNN.
Fondly-Carol

I'm with you if RSD was supposed to be dealt with,with the teenager. Do you have the email address's to CNN or any one else we could contact. I know I had an interview with the Tampa paper, and they did a great job. But how many people would have seen if rsdsa did not mention it. They even showed the gross pictures on the front page of one of the major sections. I'll help you in any way I can , please don't hesitate to ask me, I've had this crap since 1986 and been thru almost everything.I'm willing to do what ever you need me to do. Wendy

[keep smilin]

Originally Posted by wswells

I'm with you if RSD was supposed to be dealt with,with the teenager. Do you have the email address's to CNN or any one else we could contact. I know I had an interview with the Tampa paper, and they did a great job. But how many people would have seen if rsdsa did not mention it. They even showed the gross pictures on the front page of one of the major sections. I'll help you in any way I can , please don't hesitate to ask me, I've had this crap since 1986 and been thru almost everything.I'm willing to do what ever you need me to do. Wendy

This goes right along with my post from this morning...I blasted off a message early this morning....along with like 77 of my friends..Larry is having a busy day!!! Please follow suite everyone.. I am warming up the bus as we speak!!!! He thought Tiger was a good interview wait til we fill his studio!!!!

Kathy

[edever34]

Yes i saw your post!
I just went to cnn.com and looked around untill I found a site to send an e-mail. Couldnt tell you exactly where it was but think I under Larry Larry King . Hope this helps.
Fondly-carol

[edever34]

P S keep a spot for me on that bus!!!!!

[keep smilin]

Originally Posted by edever34

P S keep a spot for me on that bus!!!!!

We won't pull away without you, !!!!

k

[wswells]

Originally Posted by keep smilin

This goes right along with my post from this morning...I blasted off a message early this morning....along with like 77 of my friends..Larry is having a busy day!!! Please follow suite everyone.. I am warming up the bus as we speak!!!! He thought Tiger was a good interview wait til we fill his studio!!!!

Kathy

Please keep me in mind for that bus, this is a very importaant issue, We may have to bombard him with emails and maybe just show up! I like Tiger but it took up too much of his show when he had already scheduled the 2 others to come on and talk. This show was a joke if you were watching it for the RSD portion. I still don't understand how the rsdsa knew that there was going to be a section on RSD, someone had to tell them! Anyone know? looking for answers! Wendy

[abrown176]

I was watching Larry king that night but after so much Tiger I just turned it off and gave up. I'm sending him an email too. If he had it he would think about spreading the word and praying for a cure. I'm on the bus!

[keep smilin]

Originally Posted by abrown176

I was watching Larry king that night but after so much Tiger I just turned it off and gave up. I'm sending him an email too. If he had it he would think about spreading the word and praying for a cure. I'm on the bus!

abrown... You have a comfy seat right up front!!! Wonderful..we are going to have a great trip..Poor Larry..he's going to wish he was talking with Tiger again once we all get there..

hugz, kathy

[Sandel]

Originally Posted by edever34

I just finished sending Larry King and CNN and e-mail expressing my extreme dissapointment at the fact that RSD was not even mentioned on the Heroes segment. Not to diminish Mackenzie Bearup (the teenage girl) but I stated that if she had Cancer,M S , Muscular Dystrophy Etc that if would have been mentioned. I asked them if this omission was done on purpose and to please respond back to me. I am still so angry at this missed opportunity to raise awareness that I could scream.

I am asking everyone on this site to also send e-mails to CNN.
Fondly-Carol

http://www.cnn.com/2010/LIVING/04/08...ex.html?hpt=C1

~ Sandra

The Bearup family have been offered an episode on home makeover edition (TV show) as well, for teens who do charity work