[RNcrps2]

Tell me. I know the difference and i know they are treated the same BUT why when i read treatment trials most/all are using CRPS1. I actually have yet to find one that says using CRPS2 patients. I have read Dr. S last paper and i believe it had people with nerve injuries but they were not picked to receive ketamine they got the placebo(I know it was a double blind study so it wasnt purposely picked that way)
My question is- Is it because when a nerve is involved the results/outcome wont be as good as with CRPS1? That logically makes sense to me because if there is no nerve damage than treatments might work better. Whereas if a nerve is damaged even if ketamine works on the CRPS there is still a nerve injured . Has anyone read an article using CRPS2 patients? momof4

[bobber]

Momof4
You are correct,,there's alot more litature on RSDI than RSDII {causalgia},,this is what I have,,RSDI is what most people have and what is most seen in clinical trials ,RSDI ussually prgresses slowly or in some cases ,levels off,or stays in 1 or 2 limbs or in some cases it will stay in one limb,,theres alot of cases where RSDI will progress thru out the body at a slow pace thru years,,,,research shows that RSDI ussually comes from the form of a injury, such as twisting an ankle,,trauma to a body part affecting a nerve doing damage,,where as RSDII its normally causes by bad trauma to a nerve {QUOTE} from a bullet wound or knife injury ,,,,,,,but not alaways,,other ways that are very common to contract stage 2 is ,arthroscopic surgery to the knee and hip are very common,,,one of the keys to causalgia is bad nerve damage[severed] or entrament,,,,,,,,,,,this is one of the main reasons why its aggressive,,there is still stimula comeing from the nerve,,the spread is so agressive,,,,to answer your question,,,ketamine treatments are sometimes used to re-boot the nervous system,,,but,,in my opinion,,,if you re-boot the system and the nerve entrapment is still there,,,it will probually come back after the body relocates the entrapment,,,im not saying ketamine treatment is useless for RSDII,,,,IM going by what ive read,been told,and own personal therory,,I do know that calming the entraped nerve will slow down the progression,,nerve surgery to free the nerve up is not being done very often anymore in fear of making it worse,,but it is still practiced..The surgeon ussualy free's up the nerve and then places the limb in a boot so that scar tissue doesnt set in from early return of use of the limb,,,,,,there is some information out on the web,,,,,also several studies that ive read[ put in the search engine,[stages of RSD},,,,,what progression that one person with RSDI will get in several years,,,a person with RSDII will get in a matter of months,,,,RSDII IS RSDI on steroids ,,and very hard to treat or control,,

[gabbycakes]

Originally Posted by RNcrps2

Tell me. I know the difference and i know they are treated the same BUT why when i read treatment trials most/all are using CRPS1. I actually have yet to find one that says using CRPS2 patients. I have read Dr. S last paper and i believe it had people with nerve injuries but they were not picked to receive ketamine they got the placebo(I know it was a double blind study so it wasnt purposely picked that way)
My question is- Is it because when a nerve is involved the results/outcome wont be as good as with CRPS1? That logically makes sense to me because if there is no nerve damage than treatments might work better. Whereas if a nerve is damaged even if ketamine works on the CRPS there is still a nerve injured . Has anyone read an article using CRPS2 patients? momof4

You hit it right on the head. I am a CRPS II patient and have done the ketamine in-patient and that is exactly what happens.

Gabbycakes

[keep smilin]

Originally Posted by gabbycakes

You hit it right on the head. I am a CRPS II patient and have done the ketamine in-patient and that is exactly what happens.

Gabbycakes

I had my sympathetic nerve cut in my chest, both sides during two surgeries for the first rib to be removed on each side due to TOS..intentially cut by my surgeon many years ago..Now today I had RSD....CRPS most likely II as like Bobber and Gabbycakes...much spread and fast...

Hugz..Kathy

[olecyn]

Holy cow Kathy, now that is so not right. Do I dare ask who ur surgeon was? U can PM me. I dont plan on having any more surgeries but sure would like to know for others sake.
Cyndy

Originally Posted by keep smilin

I had my sympathetic nerve cut in my chest, both sides during two surgeries for the first rib to be removed on each side due to TOS..intentially cut by my surgeon many years ago..Now today I had RSD....CRPS most likely II as like Bobber and Gabbycakes...much spread and fast...

Hugz..Kathy

[olecyn]

WOW! I am learning so much here on the RSD forum. Had no idea there was a difference. I obviously have RSDII since it set in throughout my body within just a month(s) of my injury. THANK YOU, fabulous explanation.

Originally Posted by bobber

Momof4
You are correct,,there's alot more litature on RSDI than RSDII {causalgia},,this is what I have,,RSDI is what most people have and what is most seen in clinical trials ,RSDI ussually prgresses slowly or in some cases ,levels off,or stays in 1 or 2 limbs or in some cases it will stay in one limb,,theres alot of cases where RSDI will progress thru out the body at a slow pace thru years,,,,research shows that RSDI ussually comes from the form of a injury, such as twisting an ankle,,trauma to a body part affecting a nerve doing damage,,where as RSDII its normally causes by bad trauma to a nerve {QUOTE} from a bullet wound or knife injury ,,,,,,,but not alaways,,other ways that are very common to contract stage 2 is ,arthroscopic surgery to the knee and hip are very common,,,one of the keys to causalgia is bad nerve damage[severed] or entrament,,,,,,,,,,,this is one of the main reasons why its aggressive,,there is still stimula comeing from the nerve,,the spread is so agressive,,,,to answer your question,,,ketamine treatments are sometimes used to re-boot the nervous system,,,but,,in my opinion,,,if you re-boot the system and the nerve entrapment is still there,,,it will probually come back after the body relocates the entrapment,,,im not saying ketamine treatment is useless for RSDII,,,,IM going by what ive read,been told,and own personal therory,,I do know that calming the entraped nerve will slow down the progression,,nerve surgery to free the nerve up is not being done very often anymore in fear of making it worse,,but it is still practiced..The surgeon ussualy free's up the nerve and then places the limb in a boot so that scar tissue doesnt set in from early return of use of the limb,,,,,,there is some information out on the web,,,,,also several studies that ive read[ put in the search engine,[stages of RSD},,,,,what progression that one person with RSDI will get in several years,,,a person with RSDII will get in a matter of months,,,,RSDII IS RSDI on steroids ,,and very hard to treat or control,,

[Abbie]

Just a little fyi... not all Type 1 stays where it began or spreads slow....

I have Type 1.... mine has spread faster than any doctor I have been to has ever seen... is full body with internal organ involvement.

From http://www.rsds.org/2/what_is_rsd_crps/index.html

Type 1 also referred to as Reflex Sympathetic Dystrophy - cases in which the nerve injury cannot be immediately identified.

Type 2 also referred to as Causalgia - cases in which a distinct "major" nerve injury has occurred.

[bobber]

abaski
I didnt know if your comment refered to my post,,if you re-read my post,you'll see that I covered what you miss understood,of my first 5 sentences.....Bobber,,,,,,,,p.s I hope and pray that you dont have a undiagosed nerve compression,,,

[Abbie]

No misunderstanding on my part... just wanted to do my part to make sure that the definitions of CRPS/RSD-Type 1 and CRPS/Causalgia-Type 2 were easy to read....

As we all know... no two of us are the same.

It should be noted that just because a person is diagnosed with Type 1 it does not mean they can not or will not have a fast spread... it also does not mean that they will...

It also should be noted that just because a person is diagnosed with Type 2 it does not mean that they will have a spread... fast or slow. It also does not mean that they will not...

I know through my own research that there is a lot of old (out-dated) and misinformation about RSD/CRPS on the Internet and that we should all err on the side of caution and talk with our own doctors about the information found as it pertains to our own situations.

I'm 6 plus years (not old to this diagnosis but not new either)... have been through every test known for nerve damage/entrapment and RSD/CRPS (bone scans, nerve blocks, x-rays, ct scans, mri's, emg's, eeg's) and then some...

I have been to numerous "specialists" who all diagnosed Type 1 with full body spread and internal organ involvement... I don't have any nerve compression, entrapment, or damage. Thank you for your concern.

[keep smilin]

Originally Posted by olecyn

Holy cow Kathy, now that is so not right. Do I dare ask who ur surgeon was? U can PM me. I dont plan on having any more surgeries but sure would like to know for others sake.
Cyndy

I know crazy right, Cyndy.... At the time I didn't question his motives as he claimed he need to cut it to have room to work inside my chest....and he was the best thoraic surgeon here... AND to boot he is now retired as he developed a brain tumor and moved out of the area...... this was 20 yrs. ago..following a bad car accident.... I would love to pM you..how do I look up your name for that..invite me to be your friend..then I will be in touch.. mine is under keep smilin...

Hugz, my friend, Kathy