Well I thought I would join in. For now, two docs here in So Cal have dx'd possible RSD in left shoulder. Been reading for a couple of weeks. Actually going to go see fmichael's doc for another opinion.

Had a frozen shoulder for two years during which i also fell on and jammed. Got an injection a year ago and the overreaction in the area of the shot was incredible. Looks like they think the shoulder has developed RSD. Unfortunatley it also looks like there is an impinged nerve in the shoulder which could be contributing. THey would need to do surgery on it. And apparetly not many ortho's do this surgery becasue its rare to have this nerve impinged. But leave it to me to be complicated.

Had a stellate, suprascap and axillary block this week Wednesday.

We shall see.

Oh Shelley....

I wonder if they have done studies on the % of TOS patients that end up with RSD also....

There are enough of us here ........We could be a study !

Sorry you've joined the RSD club Shelley. I hope this new doc has something to help you.

I have wondered the same thing as I had TOS due to a car accident in1988..Two years after the accident I had to have both of my first ribs bilaertially removed..due to impigenment AND during both sugeries my thoraxic Dr. cut my sympathetic neve in my chest. He felt it was in protocol of the surgery..Now 20+ yrs. after I have RSD...I have asked countless times, even Dr. S in Pa. if that could have contributed to my RSD he said possibly..
Interesting!!!!

Hugz, Kathy

Have you thought about maybe having some PT to try and stretch the area to get some room in there. If you have to have surgery ask the Anesteolgist for a block.

Jo, I do believe I had RSD with my TOS before any surgery was done.

Ada

Hi I am so sorry. I am glad you are getting another opinion. I'm big on those. Hope you feel better

Thank you everyone, appreciate the support.

Hi Shelley, My RSD began right after a breast biopsy-frozen shoulder. Went immediately into physical therapy and massage therapy. After 50, this ortho surgeon wanted to operate, but I said no. Another 50 and had full use of shoulder/arm. They said it might go to other shoulder. We moved from Oregon to Arizona and after a year, it did move. back to therapy and full remission. While water skiing, got frozen hand-misdiagnosed with RA. Went back to Oregon for sports injury doc and the hand ortho diagnosed rsd in 1 minute. nuclear med test confirmed.
If you go to rsdrx.com and go to puzzles. Dr. Hooshmand in Florida practice 40 years on rsd. Go to #75 puzzle-it's really a question with his answer. Any form of invasive treatment is frowned on in the RSD community.
RSD used to be called hand shoulder syndrome.
I hope good report on your Dr. trip. Your friend, loretta