[abrown176]

Well today my daughter slung open the car door and nailed me flat on my back. I just had surgery 4 weeks ago on my SCS. Well needless to say I am in severe pain tonight. Called my reps from medtronics and they both called me back to see if I'm okay. They said to call and come into the doctors office on Monday if I'm not feeling better. Wow what service haven't had that before with them. Think I might ask to have it removed. Feel like I have the RSD setting up in the battery pocket. I am so miserable and nobody understands. My husband went to work and then called me and told me he can't deal with me anymore. Then sent me a text and said he loved me and see me in the morning. Man am I confused. He couldn't explain what he meant and I just wish he could be more supportive. I know its alot on the whole family and I am sorry for causing all the stress. I need him and love him so much. I don't want to be alone. I hope this is not what he meant. Please pray for us that we can make it through this. Thanks!!

[Rrae]

Angela

As IF you haven't been thru ENUF!!!
I'm speechless.
I was just thinking about you today while I was at Walgreens looking for icepacks (for a tooth I had pulled)......and I saw these 'things' called "Tough Pads"....They are made by Johnson and Johnson.....
It's a shot in the dark, but I wondered if something like that might help your pocket site...... I bought some for my pocket site. Also picked up something similar. They're called 'Triple-Layer nonstick pads. They are for 'healing protection'..... ?
I'm desperate for something to help you.......these are probably not near what you are needing. I was gonna send you a PM when I got home, but then I see this post and I can't believe how things just seem to go from bad to worse for you.
I am so sorry my friend.
And for your husband to say that to you on a day like today of all days......
It sounds like he's pretty confused and stressed too, but geez.....you didn't need that ! At least he sent you the text tho.

I'll be up late tonite.......feel free to PM me if you want to unload.
You've got WAY too much on your plate.
I hope your kids are being understanding......mom needs some TLC.
Hopefully they'll go to bed soon and give you a chance to sort out some thoughts.
I'm here for you.....
Your Friend
Rae

[screwballpookie]

I kind of know what you are going through with everything. My husband is a truck driver and he says things like that to me a lot. Sometimes I wonder if my hubby wouldn't be happier without me and my daughter. I have been fighting wc for 7 yrs and am not sure if I am finally at the end of the battle with them or not.They are suppose to pay for all my medicals and have yet to do that. My husband has had to pay for all my meds out of pocket til they decide to finally agree that they are wrong.We pay over $600 a month in meds right now. I know this isn't easy on the family but it is not easy on us either. We did not ask for this disease. If my hubby were to leave my daughter and I I am not sure how we would make it because my daughter is 14 yrs. old and she is pregnant by a 25 yr. old. So yeah I am fighting that as well. My hubby and I have been founded by dhs for not supervising our daughter and letting her get pregnant at her age. Like I said I know alot about stress. I live with it everyday as well.My hubby doesn't make it any easier either.If you ever need to talk I am here for you. You can PM me anytime. I hope for the best for you. I love my husband very much but it doesn't seem he loves me as much as he use to. It sucks.We have been married for almost 17 yrs. and together for almost 19 yrs. I didn't get this disease until 7 yrs. ago.Ever since it has just caused more headache than what life is worth sometimes. But I keep trying to keep my chin up no matter how rough it gets. Try to keep your chin up and fight like the dickens.You are in my prayers.Take care and hope to talk to you soon.

Sincerely,
Tracy

[dreambeliever128]

I had a whole post written and lost it. This damn new laptop. Got it for Christmas and it's still driving me nuts

I am sorry to hear what you both are going through.

I was wondering if councelling might help you and your better halves. Bill and I spent years in councelling seperately. It helped him understand what I was dealing with and visa versa.

Also as far as meds. Have you called the companies to get the form to get them free? They will send you a form to fill out and if you can't afford it they will send them to you through your Drs. office for a year and after the year you just fill out the form again. It's pretty easy. Bill and I got some of our meds free for years through the companies that make them.

Andrea, have you tried the lidocaine patch to put on the site?

I do hope both of you finally find some relief for your pain and fjind some peace in your lives.

Ada

[abrown176]

Hi Tracey,
Thanks for your reply. I now I am not the only one dealing with this but it sure is a lonley place to be. Mabye will pm each other some time.


And for the other I don't think i could get my husband to go to counseling. I go 1 time a month.

I had to give in yesterday and go to the ER. Man the doctor just barely looked at me and said you need to see the doc who implanted the SCS. I told him I wasn't there for the SCS but i was there to have my neck and back checked cause I was in so much pain. Well that didn't help. He said you already take Norco and after that I was treated like a drug seeker. He should check my bottle of Norco. I get 180 tablets for 1 month and i got these in february and still have a few in them. I finally got two shots and relief. I started drifting asleep and then my breathing would drop on the monitor and an alarm would sound. They would have to wake me up and then it would come back to normal. So now I will have to go get a sleep apnea test done. Hope I keep breathing at night until I get it done. Please Pray cause it seems like there is always something else to fight. Thanks everyone and all prayers are greatfully appreciated.
Angela