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Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS) |
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#1 | ||
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Quote:
How did I do..Sorry for your awkward moments today... Bless you! Hugz, Kathy ![]() |
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"Thanks for this!" says: |
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#2 | ||
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Oh, I have the same problem. My RSD is my left hand and arm. I feel bad pulling away as many don't know or understand. I don't even understand. How do I explain to them? I feel like I need to walk around with a "do not touch" sign. I am involved with a 4H group with my kids and the kids are more cautious of my left side than parents are. Many days I have a nice, comfy mitten or glove on my hand if it's cold. The kids again, are great but parents just don't get it. When I had a cast on my arm they understood and were helpful and great. I have tried to maintain as normal a life for my husband and kids but when a party or night out with friends comes up i am so nervous.
I will say that I have recently been using a tens unit. At first I didn't like it but now I love it. It comes with a glove that my Dr thinks would really help but I cannot tolerate the feel of it. Anyway, if I am going out somewhere that makes me nervous I use the tens before and bring it with me so if I can sneak away I will use it. If only it were wireless. I also have a compound gel that helps on really sensitive days. |
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"Thanks for this!" says: | Kakimbo (05-28-2010), Lisa in Ohio (04-27-2010) |
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#3 | |||
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Magnate
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I bet we all deal with what you are talking about. My Grandson's hug me softer then most people and boy do I live around huggers. I didn't grow up with hugs even though there were 10 of us kids. Mom and Dad did good to keep us with us so they didn't have time for the hugs. i was also abused as a child so hugging was not something I wanted. After councelling and a hugging Dr. and best friend, they have taught me to let people hug but like you I dread it. I can't even stand to touch myself. I don't have the answer though, I kind of cringe and they do know my problem. You just get tired of explaining yourself about no touching.
I liked my tens unit too. I used it for a few years to help me. Ada |
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"Thanks for this!" says: | Kakimbo (05-28-2010), Lisa in Ohio (04-27-2010) |
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#4 | ||
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I have just said 'that really hurts' over and over and over and over, and nobody touches me anymore. lol. And when they ask why, i say it just does. If you really want to know it'll take a full dinner to explain. But ' it just does' tends to do the trick, and people just say oh ok. and dont touch me anymore.
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"Thanks for this!" says: | Kakimbo (05-28-2010), Lisa in Ohio (04-27-2010) |
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