Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

 
 
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Old 05-27-2010, 08:34 PM #7
Lisa in Ohio Lisa in Ohio is offline
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Join Date: Mar 2010
Location: Forest, Ohio
Posts: 379
15 yr Member
Lisa in Ohio Lisa in Ohio is offline
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Join Date: Mar 2010
Location: Forest, Ohio
Posts: 379
15 yr Member
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Oh boy! I had a doc appt with my pc doc today and ran into a nurse who had never heard of RSD. She was really rough with me. I had to have an EKG, and she grabbed my arm to put it where she wanted it, slapped a sticky on it and ran into me several times while I was laying on the table.

I was then sent to the hospital to get wired into a 24 hour heart monitor, again by a nurse who had never heard of RSD, and was told not to use my TENS unit, heating pad or electric blanket.

I was really upset that these health care professionals had no knowledge of this disease and further more had NO desire to learn about it or ask me about being touched. Needless to say, I am miserable tonight and really dreading the ECHO that is to come on Tuesday. How do you get these people to listen to you and why are they not educated?

Sorry for the rant, I just needed to vent- cool mist only, no heating devices. Hope everyone is having a comfortable evening, Lisa
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