Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

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Old 05-01-2010, 12:51 AM #1
Skooz Skooz is offline
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Join Date: May 2009
Location: Orange County, CA
Posts: 28
15 yr Member
Skooz Skooz is offline
Junior Member
 
Join Date: May 2009
Location: Orange County, CA
Posts: 28
15 yr Member
Default Neurontin anyone?

Quote:
Originally Posted by DMCACHEN View Post
I am new here and I know it is rude to start right in with questions but I was wondering is anyone has tried this for the constaint pain? The main site of my RSD (I do not know if that is the right terminology) is in my foot cause by having my old boss drop a 500 pound cabinet on my foot while we were moving offices. I also have muscle spasms all over my body as well as other issues.
I had a physical with my GP and while he does not know much about the RSD (I am the first time he had ever heard of it) he thinks the neurontin may help with the constaint pain. After 3 years, I really don't want to get my hopes up again but for the last 6 hours all I can do is daydream about returning to a life that I enjoy. I would rather dash the hopes now and be pleasently supprised later if it works than get all excited and then get knocked down again.
Thanks in advance.
D
I am sorry to learn you have been diagnosed with RSD. Neurontin is an excellent drug for RSD, often one of multiple drugs that patients will use to manage their pain. I have been taking 3000 MG of Neurontin daily for 7 years as one of five medications in what my specialist refers to as my "cocktail". You mentioned that you are being treated by a GP and that you are his first RSD patient. You are fortunate that he has diagnosed your RSD. Because RSD is a complex disease and the pain is difficult to manage, you may want to also consult with a pain management specialist or neurologist with expertise in RSD who is able to offer the broad spectrum of treatment you may require, such as complex medications, pain blocks, spinal cord stimulators, and physical therapy. It is acknowledged that the window of treatment in the first six months of onset of RSD is critical. You have an opportunity now to obtain aggressive treatment that will impact your long-term outcome. The RSD Association and their web site provide a tremendous resource for newly diagnosed patients, in addition to the helpful people you will meet here. I cannot encourage you enough to find the top specialist in your area as soon as possible. There is great help available. We are all here to support you!
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