Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

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Old 04-30-2010, 05:43 AM #1
daniella daniella is offline
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daniella daniella is offline
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Hi. I don't have a missing limb but wanted to say welcome to the boards and I am sorry for all you are facing. I agree we must hold to hope. Are you under the care of pain management? Sending good thoughts and I am sorry I don't have more to suggest.
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Old 04-30-2010, 05:54 AM #2
2claws 2claws is offline
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2claws 2claws is offline
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Quote:
Originally Posted by daniella View Post
Hi. I don't have a missing limb but wanted to say welcome to the boards and I am sorry for all you are facing. I agree we must hold to hope. Are you under the care of pain management? Sending good thoughts and I am sorry I don't have more to suggest.
Hi Daniella
Thank you for your welcome. Yes I am on pain management - I have been through many meds from Amitryptilin to Gabbapentin, Tramadol and many more and the only meds that give any slight relief are Oxycontin. The scare is their addictive properties but without it the pain is more unbearable. I have to see a palliative specialist in the next few weeks, though Im not sure what he can offer.

But thank you again
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Old 04-30-2010, 07:12 AM #3
sukadog sukadog is offline
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Originally Posted by 2claws View Post
Hi Daniella
Thank you for your welcome. Yes I am on pain management - I have been through many meds from Amitryptilin to Gabbapentin, Tramadol and many more and the only meds that give any slight relief are Oxycontin. The scare is their addictive properties but without it the pain is more unbearable. I have to see a palliative specialist in the next few weeks, though Im not sure what he can offer.

But thank you again
Hi,

I recently saw an interview on the Colbert Report with the inventor of a new prosthetic arm that is being primarily provided to bilateral amputees. It doesn't look like it involves the other arm/shoulder at all. but it looks like it's currently only being tested/studied in war vets. I don't know if there's any way to get in on this, or anything similar.
(Dean Kamen
Episode: #06045)

I'm sorry that i don't have any real info. It's encouraging and inspiring to hear about what you're doing.
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wishing you peace and relief! Sukadog crps2 right arm/hand since 8-28-08 (direct nerve injury)
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