Cymbalta 60mg at bed has worked well for me also. I also take 300mg Lyrica. I think it the combo helps both the pain and my mood. I still have days where it all builds up and I have a meltdown but my husband said he'd much rather give me a day than see me miserable all the time. Hope it helps your daughter. I hate this but would much rather it be me than one of my kids.

It is so difficult to see your child suffer...You would give your life to give them pain relief. I cant tell you how this is. I am happy to hear that your husband is so supportive. God will bless him. She was unable to take the lyrica, it dropped her blood pressure too low. But, hopefully this will be an answer for a little while. My prayers are with you.
Sandy

First thing I want to say is your daughter is in my prayers and I hope the best for her.As far as the Cymbalta I have been on it for 5 or 6 yrs. and I think it is doing something for me but what I am not sure due to myself being on a whole ton of meds.The only side effect I get from it is if I don't take it which I take 120 mgs. a day cuz I don't have any I get very sick and light headed. I feel like my body is going through withdrawal symptoms. I myself am not addicted to it but I feel since it has been in my system for so many years that my body has adjusted to having it in my system so therefore without it it makes me feel horrible until I get some more inside of me. Best wishes to you and your daughter.

Sincerely,
Tracy

Hi,

I have heard from many people that if they miss a dose, they feel the same way as you. Thank you for your prayers, She has been having a few trembles with her hands. She was really loopy for a few days. But, she seems to be doing better. Thank you for your prayers.
Sandy

Dear Sandy and Gabbycakes
Sandy,I am so sorry you are having to see your daughter struggle in pain..I know you would do anything to take her pain away..I am a Mom, and I can only imagine what it must be like to feel helpless in trying to bring relief to your daughter..
I am hoping that there can be a turning point when she will start to get relief.

Gabbycakes, it must have been a difficult time while you were waiting for results from your daughter's test and diagnosis.
I send you and your daughters my love and hope for treatment that will help them long term and bring them comfort. I hope it helps to know that we are here to listen
Sending hugs to all of you,
Hope4thebest

I loved it, it helped reduce the burning pain. The first few monthes it killed my appetite and I lost quite a bit of weight. Make sure she takes it with food. Whole milk, yogurt, or a few tablespoons of ice cream worked best for me. My stomach got so chewed up I had to go off it, and many have had that problem.

Did she start the Nucynta without being on a time released opiate?

Good luck!

Thanks Sandy,

It's is one of the worst things I have had to do is watch my daughter,who is really such a good kid,smart, focused, knowes what she wants, suffer at times. Currently her surgeon is only doing MRI"s with and without contrast to monitor the lesion/tumor. So, presently there is nothing to do. What makes it a little scary it is a extremely small lesion/tumor so outside of the MRI"S or removing it there is really no other testing he can do, as he said. So she goes back in June for the third series of MRI"s and then we might talk about just removing it so it doesn't give her any trouble in the future. But my husband is really against doing any kind of brain surgery unless it's absolutly necessary. We just take it day my day and luckly she is doing everything she did before she has no retrictions and feeling well. The headaches she was getting and started this situation are not from the lesion/tumor or the Chiari Malformation it was that she needed glassed the conditions only was a catch my chance.

I hope your daughter is feeling better with her stomach. One other remedy I have used over the years is plain coke syrup, make it cold because it's a little nasty. You can find it in Pharmacy's, if you don't see it on the shelves ask the Pharmacist. Good Luck.....


Gabbycakes

Sandy, I definitely think it helps with my random stabbing pains. I don't like side effects of weight gain and dry mouth at 60mg so Dr. cut me back to 30. Tried to come off it after a few months and I found it really helps with pain so I was put back on 30mg. It is one of the only antidepressants that also help with nerve pain. Hope it helps. momof4