Hey there - First I can say for my husband that the combination of blocks and pt definately prevented it spreading from his leg when he had the injury back in 1995. I also have another friend who through pt prevented it from spreading past her ankle and actually stopped the RSD where it sat. (She is pain free and as a matter of a fact was "rocking out" at a concert with me last week!) These are just personal experiences AND were combined with early diagnosis. (Within a few months) as a matter of a fact my friend with the ankle is fully recovered - I just found this out last week. All she had was pain meds and physical therapy. I'm guessing she is a rare find and was lucky I suppose one could say, but she is hope for the rest of us.

Hubbies therapists & Dr's preach PT up and down and left and right, I have read this information also - but right off hand I have a gizzillion links and pages I have read through but will be more then happy to share the information when I find it in this pile of links! LOL

Wishing everyone pain free days...

Hi again
So sorry it took me a bit to get back to answer.
I know the neuro ran some tests on him for b12 deficiency for ANA and diabetes.They all came back ok.The standard test!

He also had an MRI of his spine.So i need to remind him to get the transcripts from that,before he goes to the clinic.

He had gone to see a foot specialist to start.Last Jan,i think.
So for 4 months against my wishes....
He let this doctor bill the insurance company for surgery{we found out later}.While he did nothing more than send him for an MRI on his feet.
Then inject him with alcohol shots!For 4 months this went on!!!

I told my dad he should have the nerve test done on his feet.
This doc actually told him.There was no sense in going through"such agony"unless the alcohol shots {he insisted on giving him} didn't work after however long.I was LIVID!!!
Thats when i finally convinced him to stop seeing that jerk and call a neurologist!

It really surprised me that the neuro didn't have him go for the test either!!
I dunno if it's because he is older or what.But he was told he basically had to learn to live with it!!

My dad had just given up once he had a bad reaction with the neurontin...
So i keep talking to him and thankfully now,he is agreeing to make an appt at the Cleve clinic.
I plan on copying this info and sending it to him.
I just cant stand the thoughts of him"learning to live"with this!!
There has got to be something to help him out there...

Quote:from frogga
[ I really hope that things improve for your dad. It is always possible that he has 2 different conditions - like RSD/ nerve entrapment or something affecting his thighs and then neuropathy in his feet - but I could be totally wrong - I am not a dr. Could be worth looking at the two conditions seperately though? As artist said RSD rarely seems to jump from foot to thigh without knee/ calf involvement .]
Thats a very good idea.
I will make sure to take notes from this post.
Thank you all for your well wishes for my dad and for all the information!
I greatly appreciate it

Take care~