Hello.
I have CRPS (from crushed nerve in arm) for many years. I am trying to find info, or links, or anyone with helpful advice based on real info relating to total body sweats.
I suffer from severe total body sweats with painful chills. I can experience this for hours or days.
I am trying to find out if any CRPS info/doctors/websites explain this as a verified CRPS symptom, and if so, what can be done to relieve it.
As a side note.
I get this total body sweating anytime and regularly. But lately I have noticed that if I am not sweating, and then I eat something, it triggers the sweats that will then continue on (just like when I don't eat and they start on their own). Just to be clear. The sweats happen all the time, not from eating, but lately I have noticed eating triggers it also.
Any useful info would be greatly appreciated. I have had CRPS for over 10 years, but lately I sometimes feel like the sweats and chills are harder to handle than the truck loads of pain I have already endured and figured out how to manage. Thanks again. Good luck to all and God Bless You.

Hi! I am wondering if you have changed or started any new meds? This can be a "fun" side effect from many medicines. Hope some of the others have better ideas for you, but I have to go and take another shower! Lisa

CRPS does impact the body's ability to regulate its temperature. The result can be sweating and/or chills.

That said, be sure to review your meds with your doctor to rule out any possible culprits, specifically Cymbalta or meds in that category. Cymbalta is a known cause of this.

If you have ruled out any med as a cause, you may have joined the ranks of those who add the suffering of sweating buckets on top of our pain.

RSD is so much fun!

The med thing was the first thing that came to mind......in particular, like skooz said, Cymbalta caused me a massive amount of sweating and overheating very easily.....Also back when I was on a high dose of Fentanyl Patch, the spikes in pain relief when changing 3 day old patch to a new patch caused severe chills/clammy/sick feeling (withdrawal-like symptoms).....so by going to a much lower dose of the patch, it kept it more evened out and the spikes are no longer happening.
When our hormones are effected, males OR females (example: opioids are a known culprit to deplete hormones), we can get 'hot flashes' and other strange episodes, not necessarily always 'menopausal' in nature....

physically, once I got my thyroid issues straightened out, it helped me to regulate my normal body heat, amongst other functions
Our Thyroid is our body's 'engine throttle'..... I had NO idea how important our thyroid is to our entire adrenal and endocrine system until blood tests revealed hyPOthyroid.......sluggish.....gained weight simply by breathing the air , intolerance to heat/cold extremes........

Regarding the dietary eating trigger......in my case the 'bad carbs' (sweets) triggered pain spikes/gluten intolerance issues.....
Maybe if you kept a simple journal of what you ate when you noticed the symptoms kick in.......I noticed on several occasions if I ate a few salty potato chips, It would spark a hot flash type of thing.......iodine reaction....?

Just throwing things out there......our bodies are all different of course....
Getting a glycemic/glucose tolerance test may help in either targeting a culprit or at least aid in the 'process of elimination' and ruling out things like diabetic risk factors, etc.
Probably need a good blood work up to see what your numbers are.....

It takes a frustrating amount of constant detective work......
I hope you can pin down some possible

Wait wait.. the same thing happens to me.. Drenching sweats...toes to my head...any given time.. both eatting and not eatting... and I am glad you brought up the eatting part ..AND the best part..I can say mine is not medicine derived as I can't take any meds for my RSD, bad tummy... I am cold turkey RSD..it may be your meds but I can say it is not in my case..This baby is pure and simple... our friend.. "Richard, Steven, David"..RSD!!!!

Hugz, Kathy

Sweating triggered by eating is called gustatory sweating, and is a symptom of diabetes.

Severe blood sugar ups and downs can cause this.
http://www.thefreelibrary.com/Diabet...ng.-a084306315

It is also a sign of neuropathy. (dysautomnia).

I think a trip to the doctor, for a complete work up is a good idea.

Hello Mrs. D~

I've done that..gotz all blood work and complete work up.. remember..I am was in the medical field...My numbers were beauty-est.. right in range... Dr. says..and I quote..Remember, Kath..you do have RSD!! Oh joy!

Hugz, K

Hi again everyone. Thanks to all for taking the time to respond to my post. This follow up reply is a real attempt to try to determine the cause of my total body sweats/chills and to try to find a way to treat them. I am having a hard time finding any concrete documentation about total body sweats/chills being a direct CRPS symptom and if so , how to treat it. I have heard both doctors and patients (including some who responded here) tell me causally that total body sweats/chills are a symptom of CRPS. But when I look for documentation I am having trouble finding any. If anyone knows of a link or other documentation that specifically refers to total body sweats/chills as a CRPS symptom, please reply with the info. Thanks.

In response to those who were kind enough to try to help with their replies to my original post, here is a little more detail about my condition. I am a guy so the female sweating issues don’t apply. My medications are stable and have been for a while. I see my doctors regularly, and I have my blood checked at least every 6 months. I am not diabetic and have been checked multiple times. The pre diabetic Fasting Insulin Test may be worth a try just to rule it out. I am not on Methadone, Lidocaine, Cymbalta, Strattera, Fentanyl, SSRI or SNRI medications. I take Aspirin (not every day) as needed but get sweats/chills both on and off the Aspirin. I avoid caffeine. I could have a food intolerance or allergy, but I get the sweats/chills all the time eating or not eating.

I definitely have suffered a traumatic Neuropathy leading to CRPS and I am trying to determine if it is the cause of the sweats/chills. I do take Opiates regularly and for many years for the CRPS pain. I see from one of the replies this can cause sweating. I have long wondered if the Opiates are the cause of the sweats/chills, and they very well may be. But over 10+ years I have been on various levels of Opiates from low to high to low again. I would think that if the sweats/chills were a direct result of the Opiates, then I would have more sweats/chills on high doses and less on low doses (maybe). But what I have is a gradual worsening and intensifying sweats/chills that started a few years after the original injury and then worsened till now 10 years later. Thanks again to all those that replied and have tried to help, and God Bless You All.

Honestly Benclay...

I think that it really is not caused by anyone thing..I think when our systems, immune systems are being taxed and for such a long period of time..our systems react any way it can which includes sweating and/or cold...our bodies are surely out of sorts!!

It is the big picture...

Hugz,Kathy

The sweating thing is crazy. It just happens. There is no warning and it seems to happen at the most embarrassing times. I try to make sure that I am well hydrated.