Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

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Old 05-07-2010, 12:29 AM #1
hope4thebest hope4thebest is offline
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hope4thebest hope4thebest is offline
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Hi Kim,
I haven't been rejected by a PM doc 'per se' but my previous PM doc said she had nothing left to offer me as I didn;t go along with her constant insistance that I have a spinal cord stimulator..She was not an anasthesiologist and didn't have the knowledge nor the ability to pursue other options! She suggested I seek out other PM docs. We had a mutually agreed -upon parting....

I was, however, rejected by the ortho surgeon who did my ankle surgery...his post op care was terrible and never took my complaints of excessive pain/burn seriously...
I had asked him in June of 2008 if he thought I had RSD..he said "no"
Then in August, it was obvious that that was exactly what I had...
he referred me to the above PM doc and then he closed the book on me to any future appts. I was shocked and angry
I finally sought out another attentive podiatrist who took a great interest in everyting I had to say...he actually e-mails me when I have a question or concern !!..and he writes letters to the WC insurance as he gets very frustrated when they decline his recommendations...
Can your GP or your neuro write your scripts until you find a PM doc that you can relate to?
Your current PM who told you to walk backwards uphill on the treadmill is hazardous and needs some RSD training ASAP!! I hope you find another PM doc soon!!
hugs from Hope4thebest
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Kakimbo (05-07-2010)
Old 05-07-2010, 07:39 AM #2
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dreambeliever128 dreambeliever128 is offline
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Default Hi Kim,

I have had 2 PM Drs. that refused me. One because I wouldn't join his rehab at 15,000 a pop, the second sent me to a Physcologist to see if I was mentally ok for taking narcotics and the Physch said yes and he still wouldn't see me. At the U of CO. one threw me out because he said I didn't read a book he wanted me to read. I did read it but he didn't even give me time to tell him about it.

My feeling is that they don't know how to deal with the RSD as Jim said, it's time consuming, and the narcotics.

I was talking to my Nurse yesterday and she thinks some of it comes down to us being women. She's on the inside and sees the difference in the treatment of men and women. No offense Men. I love my PCP but I asked him one time if it was a woman thing. He laughed and said not to go there but I do believe it's true. They look at us as malingerer's, hypocondriac, and dramatic.

Luckily my PCP does give me any meds I need so I've been blessed but boy what I went through before I got him.

Hopefully you will find a new PM Dr. soon that won't just push the SCS on you. That seems to be the thing nowadays.

Ada
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