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Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS) |
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05-09-2010, 09:46 PM | #1 | |||
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Today started out well until we started to make the "mom" rounds....with each visit my legs would do something different...I swear they have their own personalities... does anyone else have this when multiple parts are affected?...one leg was icy cold and mottled and the other was hot and formed knots...I am really going to start videoing they because only a handful of people have seen the do this. I LOVE this crazy ride.....NOT!!!!!!
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"Thanks for this!" says: | edever34 (05-13-2010) |
05-13-2010, 10:38 AM | #2 | ||
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Cindi...
YESS!!!!! I call my legs "bipolar" because they behave so differently. I hate the temperature changes and especially the mottleling and splotching. I can't handle wearing long pants because of the material brushing across my thigh. People look at me like I'm Shrek when the colors are blazing. I hate it. Also when I am covered in sweat and my teeth are chattering. SUCKS!
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"Thanks for this!" says: | edever34 (05-13-2010) |
05-13-2010, 11:07 AM | #3 | ||
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Quote:
Your friend Wendy |
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"Thanks for this!" says: | Kakimbo (05-15-2010) |
05-13-2010, 02:39 PM | #4 | ||
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Hugz, Kathy |
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05-13-2010, 07:09 PM | #5 | ||
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At least we are patriotic, Red, White and Blue all at once! Lisa
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05-15-2010, 08:41 AM | #6 | ||
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"Thanks for this!" says: | Kakimbo (05-15-2010) |
05-15-2010, 12:47 PM | #7 | ||
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How about a collective GIMP!?!
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"Thanks for this!" says: | Lisa in Ohio (05-15-2010) |
05-16-2010, 01:08 AM | #8 | |||
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I just love you all!!! My family doctor uses the MS board on here and I told him that you all have helped me so much....he understands what I go through so much because of having MS that he has been the only dr who "gets" it!
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05-16-2010, 01:24 AM | #9 | ||
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Wait...
I shivvvver too! What's that about? Is it meds? And the "looking at you"...I feel like I am "exposed" when I go out in public. Stores, Grocery shopping, etc. I can't handle being around people. I am afraid that they will run into me or hurt me. Even driving. I know that I' crazy for feeling this.,, but... Kim
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. . Last edited by Kakimbo; 05-16-2010 at 01:29 AM. Reason: Added more! |
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05-16-2010, 06:39 AM | #10 | ||
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You's not crazy..girl you have RSD... Oh I do the "dance" too...go figure I couldn't shake until RSD came along..It's not medicine I ma certain... as you know, I don't take medicine for my RSD...lets take this one to broadway!! Hugz, Kathy |
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