Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

 
 
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Old 05-10-2010, 10:41 PM #8
MaraLyn MaraLyn is offline
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Join Date: Nov 2009
Posts: 7
15 yr Member
MaraLyn MaraLyn is offline
Junior Member
 
Join Date: Nov 2009
Posts: 7
15 yr Member
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Thanks for the tips Lisa...

I do have plantar fasciaitis and have special shoe inserts. It's weird...this pain is so different than the PF pain.

Spoke with my MD and she said she wasn't overly concerned with my elevated ESR (showing inflammation) lab. She said that she thinks that I hurt because I am overweight and I get the mottled extremities because I have poor circulation because I'm overweight and that my limbs swell and turn red because I'm overweight...and, oh yeah, because there are a lot of reasons for a persons limbs to swell.

I told her I was willing to accept this but that I wanted to be proactive and I asked her if she wouldn't mind ordering an MRI or a Bone Scan, and she said that those wouldn't help diagnose RSD that the only way to diagnose it is to do a nerve block. (I know that this is one way they test for it)

She said she didn't think I needed a referral, but that she'd have to think about who she would want to refer me too. She said Physiatry, Rheumatology, Neuro....but she said she'd think about it and either call me back tonight or have her Nurse call me back. It's 8:30pm and haven't heard anything.

I called the Advice Nurse at the Kaiser Neurology Dept and she said to call my Dr. back and ask her if she was done thinking because I had already made up my mind. LOL!! I asked if I could make an appt and private pay and she said "absolutely" but advised me to push for the referral because private pay, just for a one hour Dr's visit (not including testing) could cost anywhere from $300 to $600 depending on which Doc you see...if it's an MD or an OD.

I emailed my Primary and told her what I'd like to do and apologized for being so assertive...haven't heard anything yet?

Oh well...at least I'm taking a whack at it.
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"Thanks for this!" says:
Kakimbo (05-10-2010), loretta (05-11-2010)
 


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